Anyone try dsf multiple times with success? I was on a year and a half. Herxed for months straight but the pay off was great- allowed me to walk again. Saw some slower smaller benefits with far more $$$$ and more difficult to administer treatment so thinking of circling back to this now oldie but goodie.. has anyone done this and seen success? I am hesitant bc my main llmd won’t touch the drug and I don’t see the guy who prescribed it initially anymore

My mom is likely going to need to move to a facility, but she is very concerned that they will literally throw out all of her tinctures/herbals/supplements that she's been prescribed by her LLMD. She thinks that if the doctors working in a care facility didn't prescribe it, she won't be allowed to take it. Needless to say, this would be devastating for any Lyme patient so I'm wondering if anyone has been in a similar situation and what your experience was like with being able to continue your protocols.

Her LLMD told her if she goes to a hospital she can't continue care - she hands everything over to the hospital doctors at that point and they take over.

Please, I’m looking for ANYONE who has/had an hEDS diagnosis or serious connective tissue degradation that’s improved from treating their lyme + coinfections. This is the biggest issue for me and it’s debilitating. I’ve read of people putting all their other symptoms into remission but still having these problems.

I have only come across 4 or 5 people in all my research who have improved joint stability/collagen loss/constant injuries. One was through carnivore + lymbic work, another through copper, and a couple people have found benefit from treating mold. I’m desperate for some hope to continue down this path and keep fighting.

How do I deal with the depression that comes from these infections? I have babesia and bartonella and have been fighting them for a year. I'm 20 and feel like my life is ruined. I can't do half the things I used to enjoy and I haven't felt like myself since being sick. I just constantly feel like I'm so distant since being sick. I want my old life back.

I've noticed my Lyme and Bartonella seem to have caused damage to my bones (weakness, lower density, and I suspect bone erosion in certain places). Particularly around my shoulders, especially the left one feels very damaged. This constant crunching and cracking is not just joints but also all my bones. Bones feel weird and weak and thin and all soft and just weird, and I can feel the erosion in certain places. Is this a thing?

I can't be bothered to go and get it scanned and looked at, or do a DEXA scan, as this is just another thing to pay for and deal with more doctors (which I am tired of doing), but I am very concerned that this thing has damaged my bones.

Can this be repaired? I am starting with some herbs from Buhners protocol. Has anyone any experience in repairing bone damage? Could you recommend any herbs that are useful for this?

I worked out a lot before being diagnosed with babesia and bartonella. I've been trying to get back into it here recently, I've been sick a year and slowly seeing progress but hasn't been very linear or steep. I read online that having a compromised immune system can mess up muscle growth. Is this true? Has anyone been able to still gain muscle despite having a compromised immune system? And what can I do to still have muscle growth as normal?

I used PMS machine for my muscle stiffness. I wonder what your experience has been with that. Do you feel muscle tension relieved? Does EMF make you feel worse? Does it release toxin into the blood?

I felt it released some tensions, but I would get a headache, and felt sick. I wonder why that is?

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Anyone experience any benefits taking high quality Manuka honey?

I don’t know if this is a herx or an allergic reaction. Some of my symptoms:

-dizziness/feeling of fainting -EXTREME fatigue -Brian fog -derealization -heart fluttering -tickle at back of throat -reflux/GERD -anxiety/feeling of impending doom -depression

I’ve started antibiotics and herbals. Maybe my detox system isn’t opened and my system is overwhelmed? I’m not sure but I can’t keep drinking the tea if it makes me feel like this. Anyone have any insight?

What supplements or protocols have bee the most helpful for boosting your immune system?

Anyone heard of the biologix center dr jernigan is this legit or just a another scam ?

I suspect I have bartonella along with Lyme. The Lyme tests have been both negative and positive recently, but given the bullseye rash I had initially, I'm pretty positive I have Lyme. Bartonella test was negative, but I don't really trust the lab my clinic uses for that kind of thing.

I think I may have actually had bart since the first time I had Lyme over 15 years ago, but the symptoms have gotten much worse over the last 5 years, and really bad since the new infection. I'll be seeing an LLMD in a few months to be sure about everything.

I'm currently on 28 days of doxy, since the rheumatologist I was referred to (for positive ANA and RF) saw I had only been given 10 days of it initially, and wants to be sure the Lyme is treated before doing more testing. I'm also taking a bunch of herbal tinctures, mostly from the Buhner protocol. I've started feeling better physically, but the severe brain fog, memory and cognitive impairment, and dissociation (mainly derealization) haven't improved much. I still basically feel high all the time, but not in a fun way. So I added cryptolepis the other day.

Yesterday, I noticed I felt anxious. My anxiety has been well controlled for years. Today, it's even worse. I want to scream at everyone to leave me alone. Heart palpitations and being unable to get anything done, because just thinking about doing anything I don't want to makes the anxiety worse.

Nothing else is going on that would make me suspect a herx, but I can't think of any good reason my anxiety would suddenly ramp up this bad. Has anyone else had a herx like this, and does it likely mean that I actually do have bartonella? I can tolerate it if I know it's temporary and means I'm making progress.

Hi everyone,

I’m at my wit’s end and really need help. I’ve been struggling for a while now, and I feel completely lost. Over time, I’ve noticed my lips shrinking in size (losing volume, structure, everything), and my face is changing in ways I can’t explain. It’s freaking me out, and I can’t find answers anywhere.

I really thought it was scleroderma at first, but my tests came back negative. Now, my dermatologist is suggesting it could be Lyme disease, and I’m even more confused.

Here’s the thing—I had a ton of exposure to ticks this past summer, but the ticks I found were crawling on me, not attached to my skin. So, I’m freaking out, wondering if I missed something, or if Lyme could still be the cause.

Has anyone else experienced lip shrinking or unusual facial changes with Lyme? I’ve searched everywhere, and I can’t find anything like what I’m dealing with. This whole situation is just so overwhelming and scary, and I feel like I need to understand what’s going on before it gets worse.

Please, if anyone has had anything remotely similar, or has any insight, I'm begging you to share. I’m really lost here and could use all the advice or info I can get.

Thank you so much for reading, and I truly appreciate any help! 💚

I already have celiac disease and I just got diagnosed with Lyme yesterday due to my giant erythema migran.

I’ve seen a couple things inferring that people with celiac disease are more likely to get chronic Lyme.

I guess I’m just scared and uneducated about this disease. If anyone could share if they know if there is validity to this claim and what I should be watching out for moving forward.

I was prescribed 2 weeks of doxycycline

Thank you :)

is it normal to feel like ur gonna die while taking them?

Bedridden for 6 years lyme bartonella babesia I'm stuck making a decision on what I should do for treatment I tried doxy a nd rifampin a long time ago and herxed so bad I couldn't tolerate it but I also tried herbs for 8 months and that did nothing .so not sure what to do anymore?

My Babesia test result went from 80 to 160 in six weeks and my symptoms kept getting worse. So I went to urgent care and they said those numbers don’t mean anything without a PCR test.

So the PCR test came back negative. So what does that mean?? I don’t actually have Babesia?!

They put me on azythromycin and atovaquone anyway, which I just finished today. But I feel the same. I’m still super weak and fatigued.

I’m so lost and confused….

I´m continuing my lyme treatment vlogs - Also I made a new account without a randomly generated name.

I´m starting to become cautiously optimistic with the things I´m noticing and discovering. With everything that has been tried with little results, I´m getting closer to fine-tuning the treatment regiment that eventually (and hopefully) will help me get my life back

Video journal: https://youtu.be/fA7f8LXJ3MA?feature=shared

Hope someone out there finds this helpful.

Is lyme encephalopathy fixable with treatment?

I ordered 6mg tablets (30 of them) on alldaychemist along with azithromycin bc last time I was on that I noticed it helped the Lyme (the ivermectin is for parasites I have with the Lyme) I can’t afford a Lyme doctor as I’m disabled and only have disability income which isn’t a lot, so I’m doing this best I can on my own! I was on doxy for over a year on and off every time I went off it by day 3 the symptoms came back so trying a new approach with some herbals too! How often do I take the ivermectin? And how many mg ? They only had the 6mg and 12mg all mothers were sold out

I’ve been mostly working off of a clinical diagnosis of Lyme and Bartonella, but want to get broader testing without breaking the bank. It seems to me ordering just “immunoblot igG” for Borrelia, Bartonella, and Babesia from iGenex is the best bet totaling 675$. I know other labs like Galaxy and T labs might be slightly better, but are just too expensive.

I might also add in Bartonella FISH testing from iGenex, as Bartonella is so hard to test for and seems to be my worst problem, but would love to hear y’all’s thoughts. Is it worth the 225$ extra for each igM immunoblot? Or is iGenex igG the best for its price point?

Hi folks. 16 yo daughter with long bart for at least 8-9 years. We’ve been treating off an on and have Lyme under control.

BART seems to be her biggest issue. There may be stealth Babesia lurking as well but we’ve not gone there yet.

Anyway. The Bart is a real b!t@h to treat. She did a few months of methylene blue and made progress. But relapsed when she stopped.

We see an excellent LLMD and he is recommending liposomal cryptolepis. She tried it and it gave her major brown herx.

Any other ideas? And how do you deal with the flares?

Coming off a bad babesia presumably babesia herx. Still not great but showing signs of life lol. My trachea and like my whole esophagus:diaphragm was super sore from constantly gasping for air (even though oxygen was never bad). Anyone have this ever?

My wrists are constantly cracking when i move them, whenever i am aiming in a video game and moving my wrist back and forth it cracks every time. Also i have noticed that my hands are more shaky. Anyone else gets these problems? Are these known symtoms for lyme and co-infections?