A little bit better. A little bit worse.

The rash died down a bit and my energy level came up a bit.

Took some B complex and D3 as well.

Today I have an extreme flare of rash in a new place (armpits).

Still hitting a wall on energy pretty fast.

And I slept straight through 6 hours for the first time in months (I’m sure that helped)

Still feel crap, but a better grade of crap 😃

Already have chronic lyme. Interestingly this little piece of shit is moving after pulling it out.

I have a local doctor thats pretty receptive to me with health stuff so I'm sure she'd give me doxy if requested. What do you think and how long if so?

Thanks

Hi Friends,

As you may or may not have heard Donald Trump announced that he has created a new website in partnership with RFK Jr. where Americans can make policy suggestions and vote on them/interact and leave comments. It went live today, the website is called Policies for the People. When President, he will review it quarterly and the issues that get the most engagement will be discussed by the government to be made into laws.

There are already thousands of posts on this site but naturally I made one about Lyme immediately! I suggested that Health insurance be required to cover all costs for chronic Lyme (including more expensive therapies like ozone, etc) so we no longer have to pay out of pocket for everything. I also suggested that doctors be mandated by law to prescribe at least 4-6 weeks of antibiotics to all patients who get a tick bite.

This post isn't an endorsement of Trump in any way so I hope it doesn't offend anyone, but I do think we have the power to make change!!

The link to my post is below, if you could make an account and upvote it, leave comments, share it, anything would be appreciated!

https://forum.policiesforpeople.com/t/require-insurance-to-cover-treatment-of-chronic-lyme-disease/12566

Hi all,

I got Lymes disease when I 8 years old, as a 31year old now, can I give blood or be an organ donor?

Hello all, I’ve been reading through this sub for a while now. I (26F) was diagnosed with Lyme on October 2nd after experiencing joint pain, swelling of my fingers, headaches. I didn’t find a tick or bite. The joint pain had been there for a few weeks before the swelling which is when I finally went to the walk-in. They thought it was autoimmune and put me on prednisone. I followed up with my PCP and she had me do a lot of bloodwork.

When the tests came back positive for Lyme, my PCP said to immediately stop the prednisone and start 2 weeks of Doxycycline. I was taking 100 mg twice a day. I started to feel some joint pain after I finished that, but I also struggle with health anxiety and believing myself. Now it’s been almost 3 weeks and I’m still feeling the pain in my joints (fingers, toes, wrists, ankles, and even my back). I’ve had tingling in my right hip. Most of my symptoms are on the left and right, but slightly worse on the right. The last two days I’ve slept 15 hours each day.

I should also add that I had Lyme when I was 4 and was treated then, so this is my second time having it.

I’m going to call my doctor, but wanted to hear if anyone else experienced this? Are there any tests that can confirm that it is still in my system? Thank you in advance!

Sorry if this sounds dumb, we made plans to meet with a family member for lunch who just got lyme, like 4 days ago, had crazy symptoms, then got antibiotics and had a "complete turnaround" the next day and feels fine. We assumed our lunch would be canceled, but they still want to meet. We are both getting over colds and agreed to meet-but I googled and it says it can be exchanged via saliva or a sneeze?! I imagine we will share an appetizer and give each other hugs-is that something I should be worried about?

Anyone know if this is possible? If the person is on antibiotics does that mean the lyme isn't transferred?

Thank you.

Insaneeeee neck pain after 30 g dose of vitamin c iv. I also got extremely emotional and had a panic attack about an hour after getting it. It’s been two days and I feel like I got shot in neck. The neck has also always been a place of pain for me and I think that’s where my Lyme liked to hide. Is this a herx? Is this a good sign it’s fighting off infection? Just curious thanks yall!

Quick question: has anyone here used neem for babesia?

Does anyone recommend a good LLMD in the GTA? Any help is greatly appreciated!

Hey all. I’m on day 9 of a 28 day doxycycline regimen for late Lyme. I believe I contracted it about 6 months ago, and got tested after hip and knee stiffness and pain, and facial flushing. My knee arthritis started improving within the first 4 days of treatment, but then on day 6 took a turn for the worse and remains super swollen and stiff at present. Could this be a herx reaction? I have no other symptoms.

So.. I’ve had a strange week..

I’m not sure where to begin, it’s too long to write in a post, but I’ve already had some spiritual epiphany a few weeks/months back and I felt it have a notable impact on my state of being.

I started some atbs about 10 days ago for yersinia (have some gut pain) and I am not sure of the efficacy, but maybe it’s working? I added methylene blue a few days ago and I don’t know if it just happened to coincide, but I’ve been experiencing what I can only call “spiritual herxing” I had some past life insight and saw how it related to my physical pain and somehow it has improved it seems.

It’s all pretty wild, but I came to relize this stuff is in all likelyhood tied to chronic disease.

I am curious, if you had something like that happen or if you’ve been looking at your experience from this point of view too?

I am having horrific issues at night. It has become unbearable and I do not sleep anymore.

Almost as soon as I get into bed, I get a weird, shaky sensation in chest, like palpitations, internal vibrations, et cetera. Then I close my eyes and the horror starts almost immediately (mind you, I am still very awake, just eyes closed). I get brain shakes. Brain zaps. Brain drops. Electrical currents in head. Vibrations. Feelings, like a black hole is underneath me and it sucked me in. Like i fell 3000 ft into the canyon. When I turn in bed, it feels like i will fall down, I open my eyes and sometimes feel like someone is pushing me around. I sometimes don't know where I am or what is happening. It feels like dying. I get movement and sloshing sensations in brain, shaky and nauseous in chest and body, it is impossible to fall asleep. And so horrific. Also, passes if I open my eyes!

hey i am newly diagnosed but i’ve been battling symptoms for about three years now. i’m a college student and am thinking about applying for accommodations because of the amount of sleep i need. im sleeping upwards of 12-15 hours a day. is there any advice on how to advocate for yourself or change your mindset of having something like lyme. anything will help! this has been very hard for me to over come mentally.

Hey All, So I I have Bartonella and Babesia with a low levels of Lyme. Im gonna start Methylene blue and Ivermectin soon. I haven’t taken anything new except detox stuff i’ve normally been taking. So I’ve been mostly bed ridden. I get up and walk for a max of 10-15 mins before sitting down again and can push 30 if I have to on good days. Well the other day I went to vote. I had to stand in line for close to 2 hours. I wore my compression socks to help. Well as I was in line I kept getting what I call the “pang” it feels like for a split second a wave of a mix of panic, electricity, dizziness and feeling like Im gonna collapse rushes through me from head to toe. Or sometimes toe to head. It happened a few more times when I was standing in line and I had to find a spot to sit while my mom held our place in line. I sat and was feeling really weird like my body was numb and like I was about to die. Like a really strong impending doom. Finally the line got the door to the gym and I got up and retook my spot in line. When I entered the gym I felt a heavy sinking feeling like I was being dragged to the ground. Felt like it was coming from the back of my head almost. And I had this weird pulling sensation in my head too. My eyes also got extremely heavy and my face felt like it was sinking into itself and that I would collapse and die any second. I finally pushed through and finished voting and we got back to the car and I felt even more weird. Like my whole body wasn’t there and I felt numb and had that heavy sensation and like I was about to die. Since then I’ve been having the sensations all day almost. Its really worrying me I feel like im dying. It happens at random and lasts for a bit. I feel really disoriented and out of it too like my depth perception is gone and my vision is only half registering. I’ve been severely anxious too. Does any one else get this or have had this feeling? My stomach is also all messed up and im having back pain and burning sensations in my upper back as well. Pretty freaked out rn. Thanks:)

30F - never found tick on myself, but 3 months ago my dog was bitten when we were out hiking (our favourite hobby)

29th September - 1st noticed redness and heat after very sore arm for few days, fever during the night, 3 nights prior to rash 30th Sept/7th Oct - very bad fatigue sleeping 16hrs per day, sore, aching, dull headache 7th October - pain massively reduced in arm, heat and redness gone, feel good

7th Oct/ 13th Oct - no symptoms, feel great

13th October - bad headache worsening when bending, no amount of pain medication shifting pain, cool packs worn for 24hrs to help with pain 14th October - headache going away

14th Oct/17th Oct - no symptoms, feel great

17th October - pain, heat and redness returned 18th October - eyes burning and redness 18th Oct/ 23rd Oct - back pain (sciatica), neck pain on right side, general aches, lack of strength, intense fever coming and going during day/night soaking clothes/bed sheets 25th October - pain, heat and redness gone, feel good

25th Oct/ 30th Oct - no symptoms, feel great

30th October - pain, heat and redness returning, bad headache 31st October - pain, rash present, headache fading 1st November - red painful eyes, heavy fatigue, dizzy, rash fading, pins and needles hands and arms, back twitching when staying still, neck pain on both sides under jaw 2nd November - feel better, slight dull headache behind eyes, rash slightly remains with heat and sore arm but not as big/red 3rd November - feeling great, fever returned, rash little bigger, very hot, sore arm deep into shoulder joint

4th Nov/7th Nov - no symptoms, feel great

7th November - intense fatigue is back

*Pain referred to is always left upper arm deep into the muslce/bone, some days so bad when clothes rub again it hurts, mostly just a heavy dull ache and tender to touch.

*Diarrhea present more days than not. Intense stomach cramps coming 30mins after food.

*Supplements taken daily - Collagen Peptide, Ashwaganda, Lions Mane, Kalms, CBD oil, Biotin, Daily Greens.

*Medication taken - Yasmin daily. (Paracetamol, Ibuprofen, Sleeping Aid when required). Flucloxacillin 7 days 500mg 4x per day.

I have photos of rash and red eyes, don't know how to upload.

I had positive IgM band 23 and IND 31, for IgG 23, 39, 66 and 93 were positive. Also TBRF B. hermsii IgM positive, B. duncani IgM and IgG positive. Has had a similar test result and found a treatment that worked? Am working with a LLMD and have an antibiotics prescription in the works and plan from him I would just love to hear some suggestions and success stories. Symptoms are severe swelling and pain in most joints. Treated as seronegative RA by rheumatology for two years without benefit and at this point I'm disabled, even standing up to walk to the bathroom is a big challenge.

Just want to put this up here in case it helps someone else. went 6 years undiagnosed with Lyme, Bart and Bab. I got treated for it about 5 years ago but have still had CFS flares periodically and joint pain. I finally went to a rheumatologist who was like "I dont think your issue is autoimmune but lets try Plaquenil"... HOLY HELL ITS BEEN HELPFUL! I was able to get through my whole wedding weekend without a PEM and my costochondritis and knee pain are all but gone. I feel like I can get back to life! Not sure if it means I have more than just Post-Treatment Lyme or what but its incredible to take something that actually helps! Not sure if anyone has experienced the same.

I am actually shocked that I don’t have any of these! I have a lot of the symptoms. My Igenex tests came back negative! I’m happy.. I wasn’t looking forward to herxing! But I am looking for answers. I just wanted to thank everyone for all your wisdom & knowledge! I’ve learned a ton! I wish all of you health & wellness!

Reading this naturopathic book from an herbalist who I really like. They suggest this Lyme protocol Japanese knotweed Cryptolepsis Cats claw Chinese skullcap Sweet wormwood Wild Teasel (biofilms)

Ashwaganda and rhodelia for mood and clarity

I'm new to his subreddit and to Lyme disease, so please bear with me if my questions sound dumb.

I had two tick bites a couple of days ago and have been prescribed doxycycline. The instructions said take on an empty stomach. I'm having trouble figuring out when my stomach is actually empty. Obviously, I can take doxycycline in the morning when I wake up, but how long should I wait to eat breakfast? In the evening, how long should I wait after eating dinner to take the evening dose?

Also, I'm seeing that some posts that talk about doxycycline with food, so this is confusing me too. Are there specific circumstance where one should take it with food?

I was bitten by a tick in an area where the incidence of Lyme infested ticks is high (Scarborough, Ontario, Canada). It was a nymph tick, although I’m not sure if it was a deer tick or dog tick. The tick was not engorged at all, but it had bitten me. I would have caught it in around 2 hours after coming into contact with it. Should I still get the antibiotics, or is the risk of Lyme and other illnesses being transmitted significantly low if the tick is engorged?

I also am very hesitant to take doxycycline. It has left me bedridden in the past, extremely sick, and with arguably the worst migraine I’ve ever had. Are there any natural alternatives to doxycycline that are recommended? I’ve used ADP oregano for other infections in the past and had success.

Has anybody had gut problems/pain due to lyme and co, that went away with atbs or other treatment?

A couple of weeks ago I got rear ended and got whiplash. I was thankfully approved by insurance for 2 to 3 months of massage and acupuncture. I've had two session so far and I feel such a notable difference its honestly hard to describe. This biggest thing is that I feel my blood flowing throughout my entire body, including to my heart. Like my cells and blood feel alive, its kind of a weird but very positive feeling. It's made me realize just how incredibly stagnent my blood flow was before. Its helped with my lymphatic flow too which is great for drainage and detoxing. I just saw my best friend and she kept remarking on how incredibly "clear" I seemed (this is the day after my second acupuncture session) .

My first acupuncture session, after the practitioner took out the needles, she then did Gua Sha scrapping on my neck and upper back, which helped me a ton with reducing pain and headaches. However I ended up herxing from that...hands were swore and swollen for days afterwards, which is a common lyme herx reaction from me. So the second time I went in I made sure to take a binder (Binder blend by Return Healthy) right before and for the days following. She went a bit lighter on the Gua Sha pressure this time but upped the anty with the needles....I literally had them from head to toe (lying face down so on my back). I feel so weirdly alive in my body...I'm like, is this what being healthy and normal feels like lol?! I am so excited to continue with acupuncutre and start massage soon too and see what it can do for me! Just wanted to share because I've done so many things and its really rare for me to feel this kind of shift with a treatment espeically so immediatly. Definitely recommend looking into acupuncture and just FYI a lot of acupuncture places take insurance now.