/r/Incontinence

Photograph via snooOG

A support and discussion group for those who deal with all forms of incontinence.

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A support and discussion group for those who deal with all forms of incontinence. Daily living, tips for dealing with, and q&a.

Posts must be related to incontinence in some manner. Simple product reviews of incontinence related durable medical equipment such as briefs, creams, etcetera would be considered related.

While you don't need to be incontinent to post here, this subreddit is intended as a resource for incontinent redditors and content and discussions should be aimed towards this goal.

/r/Incontinence

6,141 Subscribers

5

bladder issues? help pls

i (20M) have always had a some what weaker bladder, i pee A LOT and i mean a lot. good few times an hour but since being at university it’s just worsened so much. my friends point it out cuss im always peeing and over time its just getting worse. it’s ridiculous and i don’t know what to do as its actually just annoying now and wearing diapers or something would make things so much easier but then again if i get used to wearing those i will actually be incontinent surely? not sure what sort of direction to go with this as im now peeing multiple times an hour. thanks

1 Comment
2024/10/30
20:29 UTC

7

Childhood Incontinence?

I (32F) have long wondered about the incontinence that I experienced in childhood. It happened just about any time I laughed, which made for a really sad childhood. It was very hard to make friends or participate in any normal childhood things. Eventually I came up with this coping mechanism where if something was funny to me, I would shut it down immediately by instead thinking about how everyone I love will die someday. So yeah, I was not a happy kid.

When I was around 18-20, it gradually went away. I am so thankful for that, but now that I'm a bit older I'm realizing how much this affected my childhood and therefore my whole life. It didn't help that my parents never seemed interested in getting help for me--they were just embarrassed by it and never even discussed it with me or a doctor.

Anyone else? I've always felt like this was a really unusual thing for a kid. Does this sound familiar to any of you?

6 Comments
2024/10/30
18:11 UTC

4

Why do ISweating, irriation, hives from Cloth back products but not Plastic backed?

Hi

Why is it that I get Excessive sweating, chaffing, irritation, and hives from cloth back disposables and not a single issue from plastic backed when I switched

Thanks

4 Comments
2024/10/30
04:11 UTC

2

Outgrowing pullups goodnites

And in need of a replacement pull up.... I wear them day and night. Any suggestions? Nothing else seems to fit or keep me dry as well as the goodnites do.... But I'm starting to tear them ...

6 Comments
2024/10/29
21:18 UTC

9

In a wheelchair

Hi there I have a physical disability and moderate urinary incontinence. I use adult pull ups - high absorbency but often find (particularly at my first wee of the day), upon standing from my wheelchair I leak a moderate amount of urine that regularly misses the pull up completely and I wet my pj bottoms. I've tried multiple pull up brands and have the same issue.

If anyone here can relate or has any tips on how to manage this, I'd be so grateful.

19 Comments
2024/10/29
16:06 UTC

16

Excessive Urination

Started around May June, I started loosing bladder control, started becoming hard to hold for even half an hour. Then, sometime in August, suddenly something happened, I peed 20 times with heavy volume, l was shocked. Since then I have extreme volume probably passing out 7-10 litres per day and a need to pee every hour so like 10-12 times. -ve for diabetes Creatine 0.80 Efgr 80-85% I am so scared My mother has chronic kidney disease And I have seen her suffering Just my ALT a little high and RDW a little low in recent blood work

Not sure what is happening I feel weak. I definitely have lost my strength the way l used to. Baggy eyes Fatigue

Any suggestions! @ Message

12 Comments
2024/10/28
20:22 UTC

7

So Disappointed.

Edit - there are 3 female urologists in my area, the closest is about 1/2 hour away, the other are 45min to an hour.
Made an appt for the closest today -
Still another 3 weeks for the appt. But i did confirm that she is in that office.

I saw my primary care dr six weeks ago and he recc a urologist to see about the incontinence.
I call their office, their website says said doctor sees patients at a location near me.
6 weeks later - i arrive at the office this am.
The doctor i had an appt with doesn't see patients there - only in another office about 45 min away.
I call and cancel the appt.
And send a message to the practice under the guise of a new appt message to update their website and to confirm time, date and Location when making appts.

I'm so bummed. it's been 6 weeks with this incontinence and i thought i'd get some answers today. I had all my notes about what's been going on, had notes about treatments available etc.
and now i have to find another office and wait another - who knows how long.

arg.

2 Comments
2024/10/28
13:22 UTC

21

Inkontinence as a parent

hi, Does anyone here have experience as parents who wear diapers?? I hope I can find some good tips and advice here. I'm 38 and I've had slowly worsening incontinence for about two years. I've had to change my diet etc. I always have a mattress protector and I occasionally wear diapers at night or when I'm out and about. The current problem is that we are expecting a child and I don't know how to deal with it. It's not a problem as long as children are small, but I know that it's only a matter of time before they find out that they wear diapers. I have great difficulty taking myself seriously as a protector and father when I wear a diaper in front of the child. I would like to exchange ideas with you about this.

15 Comments
2024/10/28
08:25 UTC

9

Worried about how this effects the future

I'm 25 and I've just started to have some issues. I've been really nervous about hanging out with friends or living life how I used to. When hanging out with friends I can only think my issues or how they would be happening in the moment. I'm supposed to go on a road trip/ski trip sometime in the winter and I don't want to be so self conscious about it. Does it get easier? How do you deal with long trips with people. Who do you tell loved ones about this?

6 Comments
2024/10/27
22:48 UTC

2

Has anyone tried the new drynites?

I use the 8-15s and as a 19yo they fit really well and now they just released the new sizes the 13+ which fits like my normal ones but there is also the 8-13s but I (in the UK) only seem to come across the 8-13s has anyone used them? I want to know I can buy them as a backup if I can't get any 13+.

2 Comments
2024/10/27
21:08 UTC

16

Anyone else around my age?

First post here, 24M dealing with off and on bedwetting throughout my life. Normally now it’s happening once or twice a month and I deal with it by using a mattress protector and washing sheets when it happens. Usually will wear a Tena when travelling or sleeping somewhere else.

Just wondering how many others around my age are also dealing with this? Sometimes it gets a bit frustrating still dealing with bedwetting in my 20s but it seems like I’m definitely not the only one at least 😅

11 Comments
2024/10/27
20:26 UTC

13

Incontinence in trans people?

I'm MTF trans and have been on hrt for over 20 years. I've become increasingly more incontinent over the years. Are there any other trans people on here facing these issues?

27 Comments
2024/10/27
20:16 UTC

6

Itchiness from pads

I wear all the time and alternate between pads and pullups. For some reason with the pads I get itchy down there but I dont with the pullups. Does this happen to anyone else? Any recommendations on pads? I currently use the Poise maximum absorbancy.

9 Comments
2024/10/27
02:38 UTC

6

Cheapest DISPOSABLE UNDERPADS?

Where do you buy?

11 Comments
2024/10/27
00:01 UTC

9

Wegovy and incontinence?

Is anyone here taking Wegovy and noticed that it impacts your bladder issues in either a positive or negative way?

I started taking it a few months ago with great weight loss results and other health improvements but I hadn't considered how it might impact my stress incontinence. I certainly don't want it to make things worse. Just want to hear others' experiences.

Thanks in advance for the input!

1 Comment
2024/10/26
21:27 UTC

21

It hurts to hold in urine?

Does anybody else have this? It'll come and go intermittently for me and I'm not really sure why. It doesn't really change my ability to hold it but just hurts really badly so I'll spend a lot more time going to the bathroom because I can't handle ow much it hurts.

I doubt it's a UTI or something because I've been having this intermittently since I was 11 (now 19F).

11 Comments
2024/10/26
17:12 UTC

17

Bowel and urinary incontinence since coma

I (39F, non smoker, 68kg, 5ft6, EDS, POTS, MCAS, small fiber Neuropathy, Interstitial Cystitis, Fowlers syndrome, common variable immune deficiency. Meds: gabapentin, duloxetine, mirtazapine, midodrine) was in a coma for 2 weeks this time last year. I was then in hospital for 6 weeks and have been left with small fiber neuropathy in both legs from the knees down causing extreme pain and loss of sensation. Most of the time in hospital I spent with a catheter and a nappy due to being in the coma or unable to walk.

Ever since, I've had issues with urinary incontinence (when I cough, sneeze, bend over, during sleep etc) and lack of control over passing gas (happens without being able to stop it, when I laugh or cough etc).

It's really embarrassing me in front of people especially my boyfriend. I have had a sacral nerve stimulator for 9 years for urinary retention and had previous surgery 13 years ago for a rectal prolapse. What can I do to make this better? Are my other nerves damaged?

3 Comments
2024/10/26
15:31 UTC

18

Poor interoception

I have poor urinary interoception due to my autism. I cannot tell when I need the toilet until I’m really desperate and in pain, I sometimes end up having accidents. I’m scared of it happening in public. I’m wondering what I can do about this, please let me know if you have any advice

6 Comments
2024/10/25
20:16 UTC

5

14M UK, first time

Hi everyone, hoping for advice. Not sure if I will post this as idk if my Dad checks my search history and this'd be an awkward way to tell him and my Mum. My close family aren't amazing continence wise but not awful, and I've been known as the one who is strongest in this area, but lately I've developed something, I don't know but it's been getting worse

I've never had continence issues before, but the last couple of weeks are odd and idk why. I've started leaking a bit which is OK, I guess? But then I've been having issues faecal wise, been needing to go REALLY badly but that's been OK, but then yesterday it just happened, slipped out worryingly easily and was pretty embarrassing, luckily I was in my room and no one noticed, and at this point I'm just worried it could happen way too frequently, or in school or pee, look I'm just worried.

I don't know if anyone has advice on this sort of thing, if it's for stopping it all together, that'd be appreciated but then most people are here because they can't sort it out, or after looking around the subreddit, some bloke getting turned on by people's medical conditions. I haven't told my parents, I believe they'd be supportive, but it's just getting the courage. And if there isn't any advice on just stopping leakages from both No.1 and No.2 then something for incontinence pads or nappies. Can incontinence pads protect from No.2, or for that will I just need a nappy? Also any advice on nappies, as I don't want to get bullied for this thing. Whatever's best, you guys know much more than I do. Thanks so much :)

6 Comments
2024/10/25
19:22 UTC

12

Why do I feel like my incontinence is trying to sneak up on me?

It’s been a few weeks I think since I’ve had a spasm and an accident. My bladder is feeling tight again though. I’m keeping up with the stretches I learned in pelvic floor pt. I’ve been feeling like this since about 2days ago.

3 Comments
2024/10/25
03:44 UTC

25

Drug test

So, it’s finally happened. I need to take a drug test soon, but I’m totally incontinent and wear diapers 24/7. Anyone on here have to do a drug test and if so, how did you go about doing it?

12 Comments
2024/10/25
02:26 UTC

17

How can I get my little guy use to wearing diapers again?

I 36f and my husband 38m have two wonderful kiddos,5m and 2f.

My son has had an on again off again bedwetting issue since he was potty trained. We took him out of pull ups over a year ago and tried to train him out of the bedwetting, this resulted in many nights of us all being up late, sheet changes,him crying and us feeling terrible about it.

Today we had an appointment with his Pediatrician and she said he will grow out of it when he is ready and we just need to let him grow out of it.

She recommended we put him in goodnites so we don't have to wash the sheets so much and we can all start getting a good nights sleep again. My husband and I are SO on board with the idea, but are son not so much.

We stopped on the way home and bought him a package of goodnites with Spider-Man on the front, we opened the package and showed him one of them and he is very upset, he says they are diapers (which we know they are ) and cried saying " no I'm not the baby I don't wear diapers ".

My husband and I are very concerned, we want him wearing them but he is very reluctant.

Please help

21 Comments
2024/10/24
20:01 UTC

13

Odd question is this the right place to ask Guys ??

Alright I have a question to ask all the men out there, and any women that can answer on behalf of their man. I wish that there was so a different phrase instead of using the word incontinence one can use phrases such as loss of control or unable to control urine or a different word to use instead of incontinence,  A smaller word or phrase A word that means just the last couple of drips, or phrase that you could use ,  which meant an unintentional Oopsie.

In the past few years, I have used men's guards, both small and large, which sometimes roll down, and the gluey part sticks to my manly bits or what little hair I have left on my body, and it is painful to pull it off.

I have tried the full-fledged male diaper, which makes it seem like I'm smuggling a squirrel out of the zoo.  Big bulges in my pants which are anatomically impossible to be a human being. Where they give you convenience if an accident should happen, but they're going to give you an ultra-hard time using it as you would regularly use it.    It gets heavy in the front light in the rear and almost impossible to pull up without resting the boys on top of the pool cover if you get my meaning.

I'd like to know what you guys do, how handle this situation and still be a confident individual.  I know I worry about the visuals of all this, I do not want to be known as that's spots or be the smelly kid.

I love to travel, and I travel by wheelchair, so when I'm on the road or I'm out of the country, finding an available handicap accessible bathroom can be difficult and sometimes even impossible.  And if you've ever seen a handicapped stall in a major airport people love to use the largest stalls to get changed to shave or have a party in.

Tell me about the current brand of underwear you wear. What do you like or dislike about it? Fit, fabric, style, or any other aspects.

12 Comments
2024/10/24
19:32 UTC

19

Therapist Hurt My Feelings :(

hi everyone! i wanna thank you all for being so nice and such an understanding and accepting community it means the world to me!!!

i have a counselor/therapist at the college i go to (im eighteen and a girl) and she’s always been super duper helpful and nice!!! but she doesn’t know a lot of things as she’s different to my therapist at the trauma center. sorry i hope this makes sense!!! i just need help and accommodations at school so i meet with her as well!!!

today we were talking about fear and triggers and physical responses. it was very hard and i felt so exposed and i cried a lot. but she was nice. she brought up accidents and i cried a lot so she guessed i dealt with it and i told her i dealt with number one accidents. but i was really upset about having to admit it, it felt like i had to. i was so overcome with fear and shame and inferiority.

i’m sorry… i know i was annoying and i am sorry and i did apologize to my therapist!!! but i started asking lots of questions like if she’s judging me or if she thinks of me badly now and stuff. i can’t speak most times (i get super scared and my voice gets blocked? i don’t know how to explain it sorry!!!) so i was writing things down and i wrote a thing about how i feel less than because i am, because its normal to laugh and make fun of this issue, and everyone says it’s embarrassing, and it feels embarrassing.

she didn’t really address the mockery part, which makes me think she agrees that it is normal and okay to make fun of this. and she did call it embarrassing. she said that!!! it made me cry a lot but i didn’t tell her it hurt me. she said she and anyone else would feel embarrassed if they had that issue. that made me feel worse, not better. i do feel super embarrassed!!! i wrote her i wish the issue wasn’t seen as embarrassing, and she said “we all wish things were different”. she brought up protection even though i did not and didn’t wanna talk about it, and she said it’s “not ideal” and “no one wants to have to wear that” and such… which i understand… i don’t like needing it and i feel ashamed of it… but it hurt me to hear her say that. it hurt a lot. and it hurt that she called accidents embarrassing. sorry if it’s pathetic but i was hoping she’d say it’s not embarrassing and it’s okay to have this issue and it’s not something that should be made fun of or laughed at…. but she didn’t say that. she called it embarrassing and didn’t even mention the teasing i brought up… i feel she agrees that it’s okay to be made fun of. it just really hurt my feelings and upset me.

i’m sorry!!! i know im probably being oversensitive. i’m so sorry. i’m very sensitive in general and especially to this so im so so so sorry this may be completely on me. my therapist is genuinely super duper nice!!!! it’s probably my fault i was so hurt. i’m sorry i get so easily hurt. i just wanted to come for some comfort i guess because i wanted that from my therapist but i didn’t get it. (im so sorry if wanting comfort is bad!!!)

thank you all for being so nice and supportive im sending all of you all my love!!! thank you!!! 💕

28 Comments
2024/10/24
19:16 UTC

28

FML! Already Incontinent then got in car crash and have whiplash now! 😭 Going through so many diapers!

I was t boned the other day at 70mph. 2 days later my neck and back are sore AF and I am changing every 2-3 hours now! Please send good vibes! 🙏🏾

21 Comments
2024/10/24
00:59 UTC

9

Diaper comparison

For those who have urinary incontinence and have tried Depends, Tena, Prevail etc, which is the brand that can hold 6-7 oz ( 180-210ml) of fluid without leakage or too much discomfort?

6 Comments
2024/10/23
22:19 UTC

16

How noticeable is the smell of a wet diaper?

I know if you're around a certain smell long enough you can become noseblind to it. But do you think other people around you notice a smell of pee if you're wearing a diaper around them even if you don't notice?

20 Comments
2024/10/23
21:45 UTC

55

My school gave me a detention spending to long changing a diaper

I am (15F) t12 paraplegic and have to use a wheelchair (and also have incontinence and had it before becoming paralyzed) I go to school and at my school there is a disabled toilet that also has an adult changing table and a wheelchair hoist. I use both the hoist and the changing table at school.

I had a cover teacher as my teacher was sick and needed to go to the bathroom to go to the toilet and change my diaper as well. It took me about 20 minutes which Is about a usual time that it takes me But my teacher didn’t know that it takes me that long and he got annoyed and sent teachers as he thought I was skipping class but I wasn’t as I was going to the toilet and he sent people down to look for me. One came to the stall I was in and said I needed to go back to class now. Then I said I’m right in the middle of changing my diaper and she said I’ll give you 1 minute. And it took me longer about 4 minutes to get out and I got a detention for taking to long.

When I got back to lesson the teacher was annoyed and then I explained to him why it took so long and I said everything and he thought it made sense why it took so long. But he couldn’t take off the detention so I needed my mum to take the detention of. The teachers argued with my mum and said he has to serve the detension. So the next day during the detension I went to the toilet and spent 20 minutes doing the same thing but they got it that time.

21 Comments
2024/10/23
21:12 UTC

2

Recommendations for washable pads

Hi! Like the title says, I'm looking for recommendations for reusable/washable pads for moderate leaks. I am in Canada, so local to the country would be preferred.

As a side note. I found Aime Pads, which seem to fit the bill but at $23 per pad, not including shipping, I'm hesitant because I don't know if this is a fair price and if they're worth it.

Thank you in advance!

Adding: I'm looking because poise are giving me a horrible, itchy rash and damn, are they expensive!

1 Comment
2024/10/23
18:03 UTC

15

embarrassed

Just a rant but It’s frustrating how often I have to go and change. use the gosupreme and diaper insert but I still manage to smell bad if I don’t get enough breaks at work to go and change. I use about five inserts and one diaper change in the middle of the day. This just means I have to put myself first and take care of me. overall I do feel more confident with the combo so far.

6 Comments
2024/10/23
08:40 UTC

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