So as I’m becoming more active in this community, I’ve got a serous question. For those of us who maintain//plan to maintain/ wish or want to maintain a “bladder diary” what are you mainly looking for when it comes to that. However, incontinence logging shouldn’t just limit us to just to just UI! As some of us struggle with the opposite of what I’m dealing with or both, or for good record keeping in general! I’d love to find an app that not only does such things as logging fluid intake, voiding both ways but allows us to track such things to better understand our bodies.

I ask this question mainly because this is us, we want and know what we need. If we choose to log those things is on us. However id move to find or even better create an app (both android and apple) where we can log the information that we need to. Even if we log extra information for the doctor(s) we go to see. Data is everything, which imo leads to better results.

So obviously the app needs to track the time and date, fluid intake (what and how much), solid intake (what and how much with estimated totals), voids for urinary including leakage, and estimated quantity (or exact quantities for those who prefer to measure), bowel movements with consistency, color and solidity, and leakage there. The reason for leakage for either, and a comments. While this can be reflected on a graph to help represent what is going on over a period of time (ie a month or 30 days).

I’ve found a lot of useful apps on the store but some have better documentation than others and some only provide to one side or another. I’d love to include a night time wetting as well as this ties into everything and to help see liquid intake before and how this affects your body overall. I think it would be fun to code/build/design with those inside the community rather than doctors or outside sources as we are the ones who are looking for something we need specific to our “demands”.

Hi, sorry, I'm not incontinent, but I get the after-urinating leakage. I want to know if there's a good kind of thick or padded absorbent, reusable underwear anyone can recommend. I need something, not as far as a pull-up , but something. Thanks.

Hey everyone wanted to start off by saying happy holidays as I’m sure plenty of us are celebrating different ones this time of year. Secondly, I’ve got another update for you all. If you haven’t been with me on the first two here they are.

First: https://www.reddit.com/r/Incontinence/s/xUwkjC71Ky Second: https://www.reddit.com/r/Incontinence/s/jmS0PwYRwM

So I finally saw the urologist which they did a PVR test when I got there, 474. Saw the doctor and we talked about a few things and then was asked to see if I can try and empty my bladder (at that time I didn’t know it was full, nor did I have an urge to go as what I’ve been experiencing). They wanted to measure the exact volume voided and that was done, 630 mL. Did another PVR and it read 12. They asked if I felt any pressure while they were doing g the PVR’s which I couldn’t at all when they were pressing on my bladder.

While the conversation with my new urologist went good, it was very informative. Given my symptoms and previous issues with my back we believe there may be a connection between the two. He recommended that I try and do timed voiding with double voiding (waiting 30 seconds after going to try again to ensure my bladder is as empty as possible). He used the reference to my situation as a full glass of water having water added in it; it’s going to overflow. This is the less invasive method we chose to do however if I’m still having issues we will consider doing a urodynamics test to see what my bladder is doing. This is the most invasive method as they would have to insert catheters for the test. Another option at that point would be medication (yay more pills).

So far I can say it’s definitely helping, granted even with me doing this to the best of my ability I’ve found it rather difficult to remember/be able to keep on a good schedule for this as I’m very active in my job and livelihood. For example we drove 16+ hours to our vacation destination so finding places to stop that would accommodate this without sacrificing too much time. However it’s not stopped the night time wettings, even with cutting back and stopping drinking liquids before bed. I’ve noticed my hands, feet and face hold a lot of water towards the end of the day and into the night/morning. I’m sure it’s a side effect to one of the medications that I’m on now, which I’m going to be doing my own research after vacation. Not to mention, I’m still having accidents between the two hour period that he recommended, including full voids however infrequently they are now since starting this routine.

While I might not have gotten all the answers (yet, if possible as I know there is always something going on with my convoluted body 😂) I’m glad I was able to get some insight and direction for someone who obviously knows what to do and how to do it. I’m hoping that when I go back to see them in 2 months I’ll have a better understanding. I’m planning on doing a bladder diary here soon as that will be viable information for my urologist to see data than just what I’m telling them. So any recommendations on that would help. I’m thinking of doing Excel Spreadsheets as having my phone on me makes it easier than pen and paper m. I have I phone so if anyone has a good app, let me know. I’d love to track liquid intake (including type) with volumes, voids, leaks and estimated volumes, and other various details (what I was doing, comments and factors). I’ve looked into some apps already and I’ve found some, like how some are set up in ways but wish that there was an app that combined the best parts of each one into one functional app that would meet the desired data collection that I am looking for.

But that’s mainly my update TLDR: A good bit of helpful information was given while no true answers were given. Happy with the result of the appointment. Looking for help in keeping a bladder diary.

Once again happy holidays everyone, safe travels to all and sending positive energy your way!

I deal with urinary incontinence, and I'm scheduled to have surgery in my genital region soon. Normally I deal with my incontinence issues with briefs, but this isn't possible while healing from the surgery. I asked the doctor about a Foley catheter and he suggested a condom catheter instead.

Im already not a big fan because I'm allergic to adhesive.

Anyone have any experience with condom catheters they'd be willing to share?

I've only somewhat recently become incontinent. Primarily Urinary in nature where it all will flood out and sometimes saturate the pad. I have gotten myself nappies so i don't ruin the furniture, carpeting or even my clothes.

But was wondering what bin would you lot recommend. I have a tommee tippee twist and click atm. But it feels a bit small especially when with some nappies being very thick in the padding department.

I was wondering if anyone has recommendations for what you use or is the one I have fine. It has been doing the job so far but I sometimes need to force the pads through the opening.

If it helps current nappies in use:
TENA Slip Active Fit Ultima Large

Vivactive Slip Ultimate Large (bought as a test though they are extra thick)

As you may have guessed, I have incontinence and I have a problem that I want to solve and with your help maybe I can

The thing is, I do the catheterization but it doesn't come out completely and many times I end up going to the bathroom to pee the rest.

What can I do to improve the process? I do it sitting in the wheelchair
Could it be because of the posture? Tell me your experiences, thank you!

So, I've had Bladder/Kidney ultrasounds in the past, none of them have taken almost an hour. Question is was she being really thorough, or did she see abnormalities? I follow that up with had to have a full bladder when I went in, she did her thing, had me void, I didn't have a cath on me, thought I had some in the car but apparently I was out, so I used the bathroom as best I could, and back for more post void imaging. After 40 minutes, she went through images on her computer, jotted notes on several images, like 10, and scanned that paper somewhere...then said she was going to make sure the pics were good with the Dr, which I know is normal, came back about 7 minutes later and said I was good to go.

In the time since I voided and got home, less than 30 minutes, I hit my front door and let out a full void in my brief, like I don't know why I didn't void all that while I tried....either way, time for a change as a result of that. In most people's experience, is it likely that I have more issues going on..? Aside from the PVR...

Hello, Ive wet the bed 8 times in 3 weeks, and wet my pants twice during the day in that time too. I've been wanting to talk to a counselor for a while now as my dad died at the end of November and I'm wondering if I should bring up the wetting? I'd love to solve this without an invasive doctor visit.

M 30 very depressed

Hello,

I usually can last all day in one pullup, as I only have smaller accidents or just light leakage. However if i am out for an extended period of time or my bladder gives out a little more than usual then i find myself risking leaks. Any pad that just boosts absorbency for those days where more is coming out of me than normal.

If it helps i wear northshore go supreme overnights. one of these can last me through pretty much all day without changes, and they have leak guards so i think pads could fit in there but not too sure otherwise. I know diapers are always an option but i really rarely have those days where i would need extra protection, mostly for days where bathroom are sparse and if it's harder to make it on time. These only happen 1-2 times a month, and i can make it pretty often otherwise

Thanks!

I’m sure this is a naive question but forgive me I’m new to the sub.

I live with and care for my mother who is 93. She has incontinence issues and wears depends and other pads but sometimes they leak. Because of severe spinal issues she walks quite slowly too. (Pulls herself around mainly) so it’s not as if she could run to the bathroom.

I’m aware there are better ones out there.

What do you recommend?

I feel especially bad when she has a leak on the mattress. I understand people don’t recommend waterproof mattresses?

We’re both in the market for new mattresses and wanted to be sure before I go.

Hello everyone for the past 3 months I’ve been dealing with what I believe to be fecal incontinence, this brings issues at both my work places. I take Devrom which seems to help the odor of gas and fecal leakage. Anyways how do I keep my work uniform odor free and stain free when dealing with this when I have to tuck in my uniform. Washing it after every shift is impractical and will damage it and I don’t see boss giving me more since I just started. Is there like male pads instead of full on diapers, are there things I can wear in between my underwear and clothes? I don’t know if the leakage stains my clothes I can’t tell cause my underwear are black or colored. Thank you gonna try to get a pelvic floor appointment.

There have been times in my life where incon was worse and times where it was better and I've found that, in a weird way, I associate certain clothes that I've had more accidents in with more sadness than others.

Like for example I have a particular bathing suit that just makes me disgusted to look at and I've been avoiding it for months, just shoved in the back of my closet. Thank goodness for the winter because I won't need to wear a bathing suit for a while. I was wondering if anybody else had this? I hesitate to buy new clothing or get rid of ones that still fit me just because they make me sad but also...they make me really sad and I feel like I'm putting an emotional charge on things that don't deserve it.

Recently I’ve been getting strange reactions from people and comments that didn’t align with my perceived hygienic practices. At some point i was at war with my own body trying to correct for this odor that I’ve been emitting, which might’ve worsen the situation. I really couldn’t understand it; I was spending easily an hour in the shower cleaning myself but somehow smelling worse than the average person. I couldn’t smell this odor or pinpoint the source; so it took me awhile to come to the conclusion that I was making myself incontinent. I’ve always had stomach problems as far as I could remember. Spending an inordinate time in the bathroom cleaning myself at school or work didn’t seem practical. So at some point I was intentionally emptying my bowels before showering, something I’m learning might be contributing to my issue.

My frame of reference and what was normal was warped. On occasion I would wipe to check, after pinpointing the possible culprit, and there would be a small enough amount to dismiss as not cleaning myself properly (despite throughly cleaning before hand). However, most of the time there wasn’t any signs of anything, but still people reacted to me. So I was utterly confounded and felt I had no agency whatsoever in fixing this issue.

I have an appointment with my PCP which is some time off. However, I wanted to seek understanding from other people who might’ve experienced this.

Can I truly be incontinent and not be able to smell or see the source? Like I said most of the time there isn’t even a trace when I wipe but still there is a reaction. My job also involves a lot of walking and rushed physical activity, so I sweat in that area too.

I don't know if this is the right sub, but there are some posts here about this, so I wanted to share my experience. I did some searches prior to my procedure and didn't find a lot, so I wanted to share.

I had a midurethral sling (retropubic) placed this week (mid Dec 2024) to address stress incontinence. I also take Myrbetriq for urge incontinence. I have mild bladder prolapse that is currently being watched.

My doctor prescribed ibuprofen, acetaminophen, Tramadol (opiod pain reliever), a stool softener, and miralax prior to the procedure. I picked it up the night before (all except the Miralax) so I had it all at home. Miralax is OTC and my husband agreed to go pick it up if/when I felt I needed it.

The procedure was done under MAC -- Monitored Anesthesia Care aka sedation aka twilight. My pubic area was shaved as necessary by the surgical staff. They did it while I was sedated.

My procedure was 10:15am and was super fast -- maybe 45 mins? I was home by 2pm. I was super sore the afternoon/evening of surgery; felt like really bad cramps. Spent that evening on the couch with a heating pad and electric blanket, napping on and off. I took the next day off work and felt better, but took it easy. I went back to work (desk job) day 3 and felt much better. Pain has been controlled with ibuprofen and acetaminophen in between as needed.

TAKE THE STOOL SOFTENERS FROM THE BEGINNING. You will have a much better time of it if you do. I didn't and I really should have. You should not be straining when you have a bowel movement and the stool softeners help with that. They do not make you have loose stools.

I have dermabond on my incisions, but I think it ripped off of one of them in recovery when the nurse decided she needed to change my pad. I remember feeling a ripping sensation, but I was still groggy so I didn't piece it together til I was home. So one incision was still a little "leaky" (small amount of blood on the pad from it) as a result. It's not open, so my doctor is having me monitor it for infection and use peroxide and neosporin on it. I also have bruising at the incision sites, which no one told me about before surgery and I wasn't expecting. It's more prominent on the right, which is also the wonky incision side, so who knows what happened there. Honestly, the worst part of the dermabond is that my pubic hair is getting caught up in it. They did shave me, but only as much as necessary. So there's still hair and it's getting caught in the edges. It's not so much pain at/in the incisions. The incisions are very small - about 1/2 inch each right above my pubic bone on each side.

I have been told nothing in the vagina for 6 weeks - no sex, no tampons, no menstrual cups. I was also told not to lift anything heavier than 20 lbs for the next 4-6 weeks. But my doctor did say I can start light exercise (walking) as soon as I can tolerate it. I live in the Midwest and It's been cold and snowy, and I'm just too tired, so no exercise yet. I had asked about swimming because our family has an indoor water park trip scheduled next month (end of January 2025) and I was told that chlorinated pools and hot tubs would be okay at that time, but was warned against ponds, lakes, and oceans due to the infection risk. I'm not a bath girl, so I didn't ask about baths. For showers, I just have to be careful not to scrub at the incision sites.

So far I am very pleased with the procedure, recovery, and outcome.

My hospital charged my insurance $24,000 for the procedure so far. We have met our deductible and out of pocket max this year (a big reason why I squeezed this procedure in before the EOY) so I owe them $0.

Feel free to ask questions, ping me, etc. I know I was searching for info before my procedure and didn't find a whole lot! Happy to help!

Day 1 - surgery at 10:15am, home by 2pm, I passed the voiding trial so I did not need to go home with a catheter, sleepy/sore, took ibuprofen & acetaminophen, ate soup for dinner (comfort food!) 

Day 2 - stayed home from work, took ibuprofen & acetaminophen, was passing gas but no bowel movement, follow up phone call with nurse (this was arranged prior to surgery)

Day 3 - back to work (desk job), took ibuprofen & acetaminophen, was tired/sore after work, used heating pad on abdomen in the evening, started taking stool softeners because I was still passing gas but didn't have a bowel movement yet

Day 4 - work, took ibuprofen & stool softeners, very tired after work, finally had a bowel movement in the evening, bruising changing colors/looking funky

Day 5 - work, took stool softeners, didn't take ibuprofen in the morning b/c I thought I'd be okay, ended up taking one (600mg) halfway through the day, very tired after work, had another bowel movement, stopped putting neosporin on my incision & it scabbed over, dermabond starting to come off. I sneezed three times in a row and did not leak urine!!!!

Days 6 & 7 - took one ibuprofen each day, bruising is fading

I went back to work because I work at a school as a high school counselor and it was the end of the semester and the last week before Winter Break. It wasn't horrible, but I was very, very tired when I got home each day. Could have gone straight to bed after work each night. I don't regret going to work, but just be prepared for that if you are not able to take a long time off.

I am a 50 yr old female, 3 pregnancies, 2 live births, 1 vaginal delivery with internal vaginal tearing (7lbs, 11 oz), 1 c-section (induced, labored for hours but then urgent c-section due to cord wrapped around neck, 10 lbs). Previously did two rounds of pelvic floor PT with limited success.

So i noticed a blood clot and figured maybe it had a little trauma from pulling but now its more blood and I’m nerves have anyone ever dealt?

hi all hoping for some advice. i’ve been struggling with bedtime urinary incontinence for a while, and it’s gotten very out of hand. i’ve been to so many doctors and they’re taking too long to handle this issue. i’m wondering what underwear pads i should be buying? i’ve just been getting whatever walmart or meijer has and they’re not doing anything. i can’t afford super expensive stuff so im dealing with what i can but im hoping someone knows a better alternative than store brand? thanks xx

Hi all. As the title says, I started experiencing fecal incontinence the last few days. I, 24F, had a baby a few months ago and I experienced a wide range of bowel inconsistencies. The first month after giving birth, I was pooping literally 3 times a day. It was like everything just kept passing right through me. Then, everything got better and I was having regular bowel movements and minimal fecal incontinence. Then, the incontinence went completely away and I was relieved! However, a few days ago I started weight training again and the fecal incontinence came back. It’s not a lot. Just some fecal matter seems to leak and stay right on the anus (sorry for details). Anyways, I’ve decided to stop weight training because to me it seems like too much of a coincidence that this started up after I started doing some resistance training. I scheduled myself an appointment for pelvic floor therapy and decided that I’m just going to stick to low impact cardio and yoga, because I love working out and don’t want to just quit everything.

Does anyone have words of encouragement or maybe some insight? I read online that weight training can cause pressure and weaken the pelvic floor and I’m wondering if weight training on a weak pelvic floor just put too much strain on everything? Or if my pelvic floor is actually too tight and weight training just tightened everything too much?

When I was just doing small cardio and just a little bit of weight training, there was no incontinence. It was when I started this hypertrophy program that I started experiencing incontinence again.

How often does every one change for #1 accidents...currently in the Megamax, and it says it's good for 12 hours. It seems a waste to change it after every wetting, is it ok to go longer, not saying 12 hours, but until it it at least takes 2 or 3 voids? Otherwise I need to change to something less expensive but that can take a full void as it's been happening...

I know it’s not the best choice but my next shipment doesn’t come until after Christmas for night time usage. I just need a store brand that’s SOMEWHAT decent to get me through a few days. Recommendations appreciated. I live near walgreens, CVS, Target, Walmart.

This only seems to happen when I focus on something or just block everything out, I seem to loose complete control and don't even feel when it's coming out. Every now and then i tend to wake up quite wet, I do wear tabbed diapers just for that "just incase moments". Could it just be caused by a neurological problem?

Good morning everyone I’m hoping you’re doing well. I’m good despite wetting my clothes this morning. Ironically I didn’t notice my caregiver did. So after all that I just wanna post here wishing you a great day and take care of yourself.

This is happening to me and I'm still working with doctor to find the cause. But what are some beginner tips for managing it. I'm afraid of leaving the house. I don't know how to live like this it's so embarrassing.

hi, just need some advice, what does everyone use for a nappy bin? something that holds smell. also are there any larger sized nappy bags accomodating adult pull ups?

My teen son has potty issues since a baby. Chronic constipation. This has caused 1 and 2 accidents multiple times a day. The reality that this will be a lifelong struggle is beginning to set on me and my wife but my son puts in zero effort. Absolutely nothing invested for himself.

He overeats, avoids magnesium citrate and lies about drinking it, won’t use the bathroom without being told and holds it until the accident.

He lies about having accidents and won’t voluntarily clean himself. We continually find dirty underwear hidden even though he knows he’s not in trouble. Well, he’s in trouble for the hidden underwear but never for the accident.

I need help understanding because I’m beginning to get intrusive thoughts like disgusting, repulsive, disease, miasma, etc when I look at him and I think he knows it.

I love him and will do anything for him. But hope for him enjoying his adult life is crumbling. I really need to hear from someone that he will be ok. Im crying because I don’t know how to help him.

Anyone have advice for rash cream? Mine doesn't work so well. Use the compliments one from safeway but no luck.

Had some liquid last week, first time but realize I'm beyond pads. Thanks in advance!

Hi, 80 yr old, weigh 22 stones dad has leg disability after stroke. Cannot go to toilet or sit up from bed by himself. Been using Tena XXL slip but wondering if pads or pants could be better option and what size for a 22 stone male please? He pees and poos himself while sitting on a chair in day time and does the same in bed at night time. Thanks

So I have OAB and I’m making the switch from pull ons to briefs and and having trouble finding what fits as mediums are don’t fit right and large seems to big and has excess at the top what brands seem best to use. Also now experiencing what I believe is fecal incontinence I find marks in my diaper even when I haven’t gone and if I have it’s clean to where there shouldn’t be marks. Could this be that or something else. I’m making a drs appointment soon for this

I got it today!! It was uncomfortable but not horrible

We'll see how I feel tomorrow. I'm not sure if it's the kind of treatment that sucks more the next day, but hopefully it will be smooth sailing 👌

Obviously I haven't noticed any like instant results, however, it's supposed to show up after a few days or weeks

They did 11 injections on my bladder, I didn't pay anything because it was covered by my insurance after how many treatments I've had. It was supposed to cost $100 for the Botox, but however I use the Botox savings program and didn't have to pay anything

When I first got my Walgreens diapers I was trying to unfold them and I accidentally opened up the chamber with the filling and I thought it would be gel but it just looks like cotton . If I had better more expensive ones, would they look like gel inside, or do the cotton ones look like gel after they get wet?