Is there anything it doesn't cause, apparently it can cause late period and fluid accumulate in stomach, period is 2 wks late, I have dysfunctional osphogus diagnosed weak les ues motility problems dysphagia innafective swallowing 90% constant regurgitation liquid coming 24 7, I don't eat anything till 7pm , I have ct scan done saying descended stomach excessive air gas fluid intestines and bowels, apparently no obstruction, period is 2 wks late , 2 days in row I got alot of blood on toilet paper could be hemroid, I got bloating happening 24 7, I survive off one bannana day can't have anything else maybe avocado for dinner, anyone get late period?

Guyyyyys I think I finally found the root of all my problems 😭😭😭I have had every test under the sun except for an ultrasound with duplex Doppler or whatever. I literally expected them to find nothing but the tech was like “ummmm…..are you having lots of vomiting and pain and gastroparesis symptoms??” I was like um yeah bro….why do you ask? And he’s like ummm I’m not supposed to say but it looks like your duodenum is severely squished 💀

Just got the results this morning and holy shit a 1° angle?! I’m absolutely terrified of surgery and feeding tubes and I have a feeling I’ll need both. Has anyone else experienced SMAS and MALS together? I’m scared that if I get this surgery, then more things will go wrong and I just don’t want that but I also want/need relief….this has been the biggest battle of my entire life. I feel very stuck. I’m seeing a MALS/SMA specialist in about a month so hopefully he can help me but I’m anxious lol. I also have POTS, EDS, MCAS (the wonderful trifecta), GP, and some sort of MS/CIDP situation (still in the testing phase).

Thanks guys ✨

So today I think I’ve given up on taking Voquezna for GERD/reflux. This med was pretty cool but I started having some annoying side effects.

I only went on Voquezna since Protonix/Pantoprazole stopped working. I’ve also been on Famotidine and Omeprazole…years ago and both stopped working at some point. Has anyone ever resumed these types of meds AFTER A WHILE and they were helpful again? I’m having major rebound right now and trying to wait things out until morning.

Ginger helps me a little bit. I've been making it fresh when I want some but I work a lot too and want to save time via bulk preparation.

I once read a paper on anthocyanins in berries that they rapidly breakdown and antioxidant activity decreases every day that it sat in cold storage. Have you ever made a lot of ginger tea and noticed it stops helping after a few days in the fridge?

I feel so alone in this… my 1 year old nephew eats better than me…. I miss food and my family has no idea what it like… and the guy I am talking with wants to take me out to dinner but I can’t so I feel so alone…. Just need some encouragement… I used to be full of energy and could lift anything now it depends on the day I miss my old self I miss my life before Gastroparesis

The early satiety has been so bad lately, and I always feel like my stomach is gonna tear open at the seams by the end of the day. But mother of god, I am so thirsty. What really sucks is that liquids are the biggest trigger for my symptoms, and I know if I take so much as a sip while I already feel full I’m gonna spend the next four hours on the floor. I’m getting twitchy sitting here staring at my water bottle. If anyone remembers that one really old SpongeBob episode about Sandy’s dome, I feel precisely like that. I hate this condition.

We who are about to die, salute you!

Husband took it seriously when the last ER doc said I should seek medical attention after a week. This was my compromise. If I don't "go" today, then I go tomorrow. Pray for me. Lol

Wondering if anyone else has experienced hand tremors from, I assume, under nutrition? Just started a couple days ago. I’m on Motegrity so it’s not the meds. Just curious on your experiences.

Feeling really low today (literally! dropped below 100 pounds this morning even felt like a bad milestone. ) and realizing this flare is probably actually the worst of my life. To the point where I was having “I don’t want to be here anymore” thoughts (but don’t worry I would never hurt myself)

Sat down to do some journaling and sip tea, and my cat Cricket came to snuggle in my lap. He’s still here right now ❤️ Second day in a row that he’s done that. He’s a year and a half old, we got him shortly after our 19 year old cat Turbo died. Turbo was the best pet of my life, and Cricket reminds me SO much of Turbo both in looks and general personality that it makes me want to smile and cry a little at the same time!!

But yeah—-I can share pretty much all my struggles with this disease with my husband except for those darkest thoughts. Just not going to put that on him.

So when I had that one thing that my husband couldn’t help me through—my kitty is here to bring me comfort ! My heart is at peace for a moment

I’m in the hospital for the fourth time and the doctor just told me the only medication is Ragland and I can’t take that cause I’m sorry but it makes me feel crazy. Is this true that that’s the only medication because there’s also that anabiotic that I can’t take eitherand does anybody use medical marijuana and please let me know if it helps you thank you so much.

Last night I had a low grade fever of 100.2 if that’s even a low grade fever followed by body aches that hurt to the bone , chills, runny nose, and a sore throat has anyone had these symptoms and it turned out to be something other than the common cold? I also am home on TPN with a central line but my line does not look infected and also I keep sneezing so I’m wearing a mask.

How?

No bloating, no constipation, only epigastric pain (no matter what I eat or even I’m not taking any food), nausea, lack of appetite.

Can someone relate or maybe it is not gastroparesis?

On July after the endoscopy I developed massive epigastric pain and POTS (I can’t understand how its even possible)

The other day I had some food with my partner we had chipotle and very soon after she complained of stomach pain and loose stool. I ended up getting the same but it took overnight for it to happen. I had sever stomach discomfort and loose still the whole day after but my partners resolved almost right alway. The problem is that it hasn’t gone away I started looking into the symptoms which are sulfur burps, diahrrea and discomfort. I’m scared because this is the same symptoms you get with gastroparesis if I’m not mistaken. One thing I will add is I had a few antibiotics laying around my home which I decided to take and it clears up my burps and the diahrrea but the moment I get off it a few days later the bubbling the sulfur burps and diahrrea come back. I’m wondering if I just caught a stomach bug or parasite or bug or if I infanct do have gastroparesis because I do take ozempic. My next question is if I get off ozempic will this resolve? I keep reading people saying they haven’t found a cure for this. If someone can help me that would be great. Thank you.

Hi everyone,

My partner has gastroparesis and has been on the Enterra since Oct 2020 with very good results apart from occasional flare ups where she can't eat for a month. She is from Spain and she had moved to the UK for studies and now works here. We wanted to know if anyone has a Gastric Neurostimulator in the UK under the NHS has gotten this treatment with successful results. She is nearing half-life on the Enterra's battery and will need a surgery for a replacement soon, which she might not be able to do in Spain if she has started working here and that has worried us both as it will have some significant impact on our lives.

Also please do not hesitate to ask any questions about the Enterra device and how it has helped her eat and digest meals.

Thanks.

Has anyone tried working out with gastroparesis? I’m wanting to start working out again as I did before. I tried after getting this but I was incredibly thin and my family was concerned about my well-being. For context, I was about 116lbs while working out with gastroparesis but 133lbs before getting gastroparesis. Not working out, I’m at 122lbs. I just want to feel healthy and in shape like I used to! Any advice would be greatly appreciated!

I got a some bloodwork done recently and my c3 (complement), copper and ferritin are all low. Could this be from malnutrition? Has anyone else had similar blood test results as a result of malnutrition or something else?

I also have SMAS, MCAS and I believe some level of malabsorption as a result.

The toilet is NOT the ideal height to minimize difficulty with vomiting. What I mean, is if I could just lean forward against the sink, I’m at the PERFECT height just effortlessly have things come up and clear out. But no…can’t do that or it will block the sink. So then I bend over the toilet but then it kind of compresses my stomach and food gets caught in my throat. (Always wonderful worrying that you are going to choke on your own vomit isn’t it?)

I hate hate my period. I was just starting up FINALLY see some progress and hope after a three month flare and my motherf*cking period has to come and get me in another flare. Just hoping I can ride out the next four days and then start getting better again..

Hi y'all!

I'm so glad it's almost Friday. At work today I truly almost lost it. I had a protein shake for lunch, thinking nothing of it since I had one at breakfast and was okay, and about 15-20 minutes later started cramping. I have been flaring and when I'm flaring I tend not to consume anything but water and maybe some ginger ale, Pepsi, or apple juice at work. I work with kids, have just about no more sick days to use after using most of them in the fall getting strep, pursuing my GP diagnosis, and a previous flare before I was diagnosed and was convinced I was dying.

Now I haven't eaten since lunch, it's almost midnight, but I'm terrified and not sure I'm quite hungry. Still feeling crampy. I think I'll just go to sleep.

Anyway. I'm exhausted. Happy almost weekend to us, I hope y'all are okay.

So personally, I will be starting with an NG. However, after about six weeks, we will switch to a G-tube. I’m curious about venting. Is that just a way to release stomach contents? Like vomit or bile? How uncomfortable is the venting?

Does anyone get this problem, I have dysfunctional osphogus motility problems with les ues dysphagia but food is not propelling down it could be the ues not functioning and osphogus been grossly dilated as I think it's achalasia I have but I can't get air into stomach maybe diaphragm is pushing or something idk but it's horrible feeling, stomach is descended in ct scan showing excessive fluid gas air intestines bowels, get constant liquid regurgitation coming I have iem I know this , I won't be having anymore pills as they get stuck or don't propel down, stomach feels so descended and pressing I feel like going emergency. Constantly feel the gushing of liquid in stomach it's so distressing can't work it out,

Tbh I just wanna know how to word things the best since its not my strong suit.

I hit the criteria today from a gastric emptying study I got done. (The doctor got back to me, weirdly fast)

I was looking at the different treatmemts for it, and im honestly worried none of the meds will work (plus im, not willinf to do the anti depressant ones due to the fact my body has a very low tolerance to it, im already on some, and im worried about medicine conflicts) Plus wirh the diet, im slightly worried that wont work either cause trying to get, a spesific diet can be, expensive after awhile, even more so when im not even sure what I can eat since it seems to change each day. Tbh im just really worried, i dont want to go through anotber few months of suffering just to find a correct treatment, I want to get back to living life. (My crohns was kicking my ass for awhile, and then I got an ileostomy woth a part of my small intestine taken out, which caused so many damn complications)

I just wonder if a feedinf tube would, be the best tbh? I, sorry if this all isnt worded the best, not doing to hot. Im already scared to eat a decent bit, just because I dont wanna get sick. I cant really do anyrhing long term out of the house anymore (several hours), cause if I eat ill just get sick, and my nausea meds for it make me tired so I cant drive. Sure, my weight has been, okay I guess. I have lost 50ish pounds since getting sick. (220ish to 180-175, it stays beyween 180-175 now), but its still not enjoyable eating snd getting sick. I know it has its risks, i already thought through them a decent bit ago when I first got sick and all treatment plans were failing till I got the surgery.

Im just scared tbh. I dont want to take more meds, I already take enough of them. Im worried a diet change will be hard because the cost and the fact I do have an eating disorder, so restricting certain foods is, hard. (Tbh I dont mind if i just cut everything out. I just realistically cant do that atm), and I know they techically dont gotta be permanent if you dont get it surgically done.

I dunno, I just wanna get better, you know? My doctor appointment is still half a month away, and so that just gives my anxiety time to fester (and hence why im coming on here).

I mean I know i techically havent done much other treatment for this specifically, its just, its getting tired, and im willing to go to more of the "extreme" options to make it better, instead of suffering for months. Thats what I had to do with the surgery, exasted all my other options, missed over to momths of school, and it just wasnt a good time.

So yeah, I am basically just wondering what other more experienced folk think, cause honesrly I dont know what to think. (For reference, i am only 19, and been dealing with crohns since I was 7, so its not like stomach issues are new for me)

I've been so exhausted for the past two weeks due to being underfed. As a result, many things in my house went unattended, including dishes. I finally got the energy and motivation tonight to wash them all and empty my sink! I'm exhausted but feeling successful.

I was diagnosed with gastroparesis after an upper endoscopy, colonoscopy,and emptying scan. I have been having a lot of problems with bowel movements lately. It's like when they're over they continue to leak a little bit, or when I have a bowel movement the wiping never ends, to the point where to get clean I am wiping so much it makes it bleed... Does anyone else have this problem with GP??? I also have chronic pancreatitis... I am currently on creon for pancreatic insufficiency and reglan for GP. The nausea is no more thanks to regular but still having problems with bowels... Thanks in advance

If I can take 4 Betaine HCL tablets with every meal, (2600mg) which also contain a total of 660mg of pepsin and experience no negative symptoms whatsoever - would this indicate Hypochlorhydria?

I don't take any PPIs but I am on a lowish dose of an SSRI (75mg Sertraline).

I am planning on increasing my HCL tablets up to 8 per meal as suggested in this article: https://welllifefm.com/wp-content/uploads/2017/04/Testing-Low-Stomach-Acidity.pdf

I am slightly worried about the possibility of peptic ulcers following this though. I mentioned this to my GP and they essentially said take breaks every so often while taking the HCL to prevent this. If this does indicate Hypochlorhydria I feel slightly frustrated by my GP's response in not wanting to find the underlying cause.

My long term symptoms have been:

• IBS diagnosis
• Occasional (few times a year) colon spasms (extreme dull pain in lower abdomen/pelvis after bowel movement)
• Nausea after eating large meals, especially with a high protein content
• Frequent changes in bowel movements
• Foul smelling stool which is often greasy and yellow
• Lack of appetite and major weight loss
• Occasional (few times a year) severe heart burn

Thanks for your help.

Has anyone tried AG1 or a similar product? I’m struggling (like lots of us!) with getting enough nutrients and vitamins through my diet so the thought of trying something like this is appealing. Only 2 grams of fiber per serving which I can typically handle okay. I see ads for it all over the internet but looking at the ingredients it looks like it may be helpful.

Does anyone know the cost of having the pacemaker fit by Dr Cline at the Cleveland Clinic? Paying for yourself, not with insurance. Thanks!

I’m going to try out fish cake but I wanna see if anyone on here has tried any or if they have any other recommendations for other food i should try

Hello, I am a 23F and my gi issues have been getting worse. I have my GES in a few weeks cuz my Dr seriously thinks I have gastroparesis. One of my symptoms is nausea when drinking water or electrolytes (which I have to drink for POTS reasons). As such I have not been drinking a whole ton which makes me feel worse. Is there a trick/way/treatment that would help me stay hydrated without nausea or with less nausea?