I'm T1D but this question could be for people with T2D too. How do you keep blood sugars under better control with Gastroparesis?

I have days where my numbers stay good all day and then the next day I can't keep them under control even if I eat the same things as the day before.

For example today I woke up and my blood sugar was fine and then it just keeps rising all day and every couple of hours I will do more insulin. I have only eaten a banana today and I did the insulin for it but it still keeps rising. Do you think it's from leftover food in my stomach from the day before?

P.S. I haven't gotten any medications yet. I was just diagnosed with Gastroparesis and im waiting for the insurance to approve meds

So I was told my test is 1 hour and 15 minutes long. And they scan my stomach the entire time. I’m used to seeing mostly everyone have the 4 hour test done. Just curious if anyone else has had it done like this?

Anyone else feel like having your period flairs up your stomach?

I have never been diagnosed. I passed a 4hr GES last year. But im pretty sure this is what I have. I am a type 2 diabetic. I constantly burp. Once in a while egg burps. I havent eaten anything in 18 hours and im still burping. What causes the burps like this?

Hey everyone, recently diagnosed and still trying to get the hang of symptoms. I've noticed that during really bad days, I lie awake (like, wide awake) until 3-4 am. Is it because I was in bed all day or because I am in so much pain my body refuses to let me fall asleep? It could also be my husband's HORRIBLE snoring (I love him but it's like a whale song every night) but I was curious if any of you experience it too and what helps you fall asleep?

So I’m scheduled to have a GES this week but I haven’t eaten solids in a few weeks out of fear of the pain. I’ve just been drinking boost drinks. Did anyone else do the GES with food even though it had been a while since eating solids? I know they do a liquid test but I feel like the results wouldn’t be too accurate.

Some mornings my stomach growls and others it doesn’t. Just curious if those who have moderate or severe gastroparesis, does your stomach still growl?

Are meds absolutely necessary to treat GP? Or are there other ways and natural remedies?

So I’ve been on liquid diet only for a little while because my mouth became extremely dry, I could feel food getting stuck in my throat. We need saliva to break down food of course. Just curious what’s the longest you’ve had only liquids until you started to be able to introduce solid foods again? I’ve been drinking boost drinks and they were so good at first and now I’m over the taste 😅

I recently got a j-tube on April 12th after over a year of being on the NJ. I see people using tubie pads, or j-tube pads, in the community but I have no idea how that works. For one, it’s a little painful and uncomfortable to use them right now so soon after surgery and I also have no idea how to secure them to the area. If I place on around the tube, it constantly moves and lifts off my skin, pulling on the tube and the sutures.

If you’re someone who uses tubie pads, how do you use them??? I’m so confused.

Hello and I have been diagnosed with GP through the emptying test but I have loose stools and they happen multiple times a day, am I diagnosed wrong? I also have Afib which acts worse when my stomach is acting up. Should I seek another opinion?

I don’t understand this illness… I only have symptoms when I’m constipated I’m pretty sure and right now I have pelvic pain and aching tummy pain but I don’t think it’s related or anything. I’m also malnourished I haven’t eaten anything except dinner in the last four months maybe rarely some breakfast. has anyone’s gastroparesis ever went away even with being malnourished and getting it from a certain thing like Covid or stress or both?

Hello,

After 5 major surgeries in one year. I am suffering with gastroparesis. I’m 27 years old and I am losing a steady 5-10 pounds a week. I’m constantly in and out of the ER for IV fluids and iv zofran and pain medication. I cannot pass gas, have a BM, and I’m so malnourished I can barely get out of bed. Safe foods? Forget about it. Everything comes back up. I don’t WANT a tube or home IV fluids but I can’t see myself surviving much longer without. My hair is falling out. My teeth are becoming brittle. I can no longer work as a hair stylist/influencer. My life has been flipped upside down. I have a 7 year old little boy who is counting on me daily. He deserves none of this. I guess my question is.. how do I go about getting at home care. I understand the infection rate risks, but have zero water or nutrients is slowly taking my life. I look like a skeleton. Sorry for the rant. I’m just a girlie who is in dire need of help. I feel for all of you on such a deep level 🥹

Hi! My gf has gastroparesis and has a jet peg feeding tube since december. Since it's healed by now and she has had an allergic reaction to the medical tape, we wanted to switch to tubie pads. Our gastro nurse told us though that we had to secure the tube somehow so it doesn't rotate out of the jeujenum. Our doctor told us we were already using allergic friendly tape so that isn't an option since my gf seems to react to it anyway.

I already tried 3d printing some sort of clip for her but it doesn't really work.

I just wanted to ask if any of you has the same problem or has an idea what we could try.

Thanks for your help!

I uploaded a picture of the type of tube she has so you know.

hi fellow sufferers! a friend recommended I try this app called Nerva that is gut-directed meditations. I find it massively soothing especially during a flare up, it helps me release a lot of gas & calms me down when I feel despair. highly recommend!

Hi all I’ve had GP for about a year since stopping 2 decades worth of ssri, even though I restarted it didn’t fix the issue. So anyways I started vitamin d and been slowly increasing because it gives me insomnia. since my last increase over a week ago NO GP SYMPTOMS and normal stool which hasn’t happened in almost a year. Not sure if it will stay but I found this just quick googling

Saw this and all I could think about was GES.

Any tips for people with Type 1 diabetes? I was only recently diagnosed with GP, but I was diagnosed with Severe GP and I need all the help and advice I can get. I haven't started meds yet but my Dr said they are going to start me on some medications and said they will also probably try botox injections in my stomach in the near future.

I have a question for anyone with migraines along with their GP who is taking one of the CGRP preventatives - for me, Ajovy, and soon-to-be Emgality (b/c of insurance). I'm getting relief for my headaches per se but the abdominal pain is really difficult and it seems to be causing my GP to be worse and more sluggish.

Ive taken one shot of Ajove 3 weeks ago and am set for Emgality on may 8. I’m blaming the shot only because Nurtec and Quilipta caused the same gut punch feeling - like someone kicking me in the gut. This took about 3 weeks to appear from the Ajovy and I'm unsure if it's the med itself, a silent migraine or what.

Anyone have experience with these migraine preventatives that could shed some light? I also have mastocytosis (the cutaneous form) and take a lot of antihistamines. Could they all be slowing things down more? Polypharmacy can be really difficult! _—-

Update, I think a recent increased dose (100 mgs) of hydroxyzine is the culprit. The timing coincides!

I have ~6 months worth of Nestle Compleat Peptide 1.5 tube feeding formula. I’ve just consistently been using less than prescribed and hanging onto the rest in case I lose insurance. They’ve been stored in a cool dry place, but now the oldest boxes’ expiration date is coming up in 2-3 months, so I’d love to get it to someone who needs it.

This formula is also flavored, so even if you don’t have a feeding tube but still really need a nutritionally complete liquid, feel free to take some/all.

(For shipping/pickup estimation) I am in Southern Oregon.

ETA: It’s also vegan and soy free!

Hi everyone !

I'm very worried, for 3 weeks I urinate less then normal , has anyone else experienced something similar? Could it be related to gastroparesis? I found this website where it says it's advisable to consult a doctor if this happens, what do you think? Help..

https://www.drugs.com/cg/gastroparesis.html"

like i’m sure we all do, i get nauseous frequently (which is horrible for my emetophobia but that’s a whole other story) and just thought i’d share this video with you all! it is by no means a cure, if you need to get sick your body will know to do so, but it genuinely helps me with the daily nausea i get and i figured others might find it helpful too! when i found it i was shocked at how quickly it started working. even if you’re skeptical about these types of things, follow the directions in the description and try it for yourself! i literally use it at least once a week

This will be my first appointment with Dr Stocker. I'm not asking for any medical advice bc I know that's inappropriate, so moreso looking for personal experience.

Basically I'm wondering for people who, too, have had their initial appt what should I expect. What did they did. I'll be traveling 6 hours so hopefully they won't schedule a bunch of things requiring that drive repeatedly. Do they send you for testing the same day? What was your opinion of office staff and Stocker? Compassionate people? Did you feel rushed? I've lost 100 lbs and stay in pain so anxious for some solutions.

Thank you for your time bc I know I asked a lot of questions as my anxiety and difficulty eating is getting the best of me.

I guess I’m in a flare right now but I’m not throwing up a lot of food just stomach acid and I’m just wondering when am I supposed to know if something else is wrong? Like gallbladder appendix etc. I almost always have pain and some degree of nausea and I feel so dumb if I go to an urgent care and they’re just like duh you’re vomiting bc you have gastroparesis like what do you expect

Edit bc I forgot to add another super fun part which is that I also have Gilbert’s syndrome so I usually get a little jaundice during my flares too 😂

I’m having a really hard time finding work that I can handle. I want to find something light and non labor intensive or just flat out work at home but have no idea where to look. Any suggestions will be appreciated, TIA!

Has anyone with GP suddenly stopped Motegrity without titrating?

My GI messed up and sent my Motegrity to the wrong pharmacy, creating a 5-7 day window during which I won't have the medication because now a prior auth is required. I've been taking Motegrity daily since the winter of 2020 and my gastroparesis is under really good control (I can eat salad & raw fruits, I have regular BMs, etc).

My concern is that suddenly stopping Motegrity for this many days will throw me into a flare that will take weeks to over a month to recover from. I'm also on Linzess and I just started Mestinon for POTS.

If you have experience stopping Motegrity for 5-7 days, let me know what to expect. I hope that, because I'm on Mestinon and Linzess, it won't be that bad... but I'm in such a good place right now that I'm worried about my progress quickly unraveling. If you've ever been in my shoes, weigh in.

I'm so angry with my GIs office for screwing this up. I requested the refill last week and they didn't realize they sent it to the wrong pharmacy until this afternoon. And by the time I realized that a prior auth now was required, their office had closed. It's messed up how they can screw up but we have to suffer the consequences in very physical and debilitating ways.

Newly diagnosed with sudden onset of GP and foolishly hoping it may resolve. Curious to hear from anyone else who has gone through GP as a result of an eating disorder.

I am in recovery from a 15+ year struggle with a severe ED. I’ve read that disordered eating/recovery process can trigger it, but for whatever reason my GI doctor is very dismissive of that and just wants to put me on Reglan 3 times a day. He had nothing else to say about it. However, the nutritional specialist I am seeing thinks my case may be temporary and directly connected to disordered eating. She said my body is not used to eating a normal amount of food and will just need time to adjust and recover normal digestive functions. Apparently this could take weeks or months with thoughtful nutrition and patience. We are also adding in some natural pro kinetics for the time being.

My symptoms had been gradually improving on their own without any sort of medical intervention whatsoever. Thus I am slightly hopeful that by listening to the nutritional specialist and patiently following a careful diet, it may resolve over time. For what it’s worth, she also thinks my 5+ years of being on 40mg daily Omeprazole was further delaying gastric emptying. Just adding insult to injury. So I am tapering off those as well and following an acid friendly diet instead.

Curious if anyone on here has had GP from an eating disorder and would love to hear how you’re doing now. Has anything in particular helped? Did your GP ever go away? How long did it take?

Sorry for the long post. I appreciate anyone who replies. My heart goes out to all of you suffering from this miserable condition.

So I got COVID really bad, (fever, throat ache, body aches, stuffy nose, etc) for 2 weeks in February 2024. I’ve been officially diagnosed with long COVID. My gastroparesis has been HORRIBLE since I got COVID. I’ve lost 16 pounds and keep loosing more.

I’m wondering if anyone else had gastroparesis that was made worse by COVID infection. I’m wondering if you ended up going back to your baseline gastroparesis symptoms at any point. How long did it take? Did a certain medication help?

I just want a little hope that this is going to get better because with my current gastroparesis symptoms I’m gonna die of starvation.

I’m on liquid only for the foreseeable future. What foods are good puréed? I’m thinking chicken and rice blended with broth would be good, but what else?

Hi guys I usually don't post on here but for the last couple days i've been so beyond nauseous. My appetite has decreased more, I haven't been able to keep much down and the hunger pains are insane. I just turned 20 last week and I feel like im dying please any suggestions on foods to try or any help would be appreciated 😭