Hi all,

I have just found out I am pregnant, and I am wondering if anyone has any advice on ensuring you reach your nutrients, hydration and overall how you cope with your Gastroparesis and pregnancy..

I’ve never had to go through this before, I have contacted my Dr for some advice and have an appointment in a month, but until then, is there anything you tried that worked for you? I am so nervous, confused and worried about managing my Gastroparesis and this pregnancy.

I can digest simple refined wheat flour pretty well. Think white bread or crackers, cookies, but I'm supposed to limit gluten for another inflammatory condition I have.

I've tried all the gluten-free breads around that I could, and I can't digest any of them.

I've tried baking my own but same problem. I think it's because the other grains aren't refined and so they're high in fibre (like buckwheat for example). And they usually add fibre or a lot of oil to even the white gluten free breads.

So i have mild gastroparesis. 20% at four hours. I got put on reglan. I have had two flare ups since september. One from covid, and one from the flu. My flare ups are just super bad nausea and no appetite for about a week. My doctor started me on mirtazapine. I need help with regulating my flare ups. No foods make me sick, none at all. Its super odd. Just wondering what people do for flares to feel better instead of just “waiting it out”. I work in healthcare and its pretty much impossible for me to miss work.

So I know my meds help, but idk if this is just cause my gastroparesis is getting worse faster and faster or what but it seems like every new med I take helps take an edge off but I still have almost constant stomach pain and nausea, and I’m SO tired and have brain fog still even tho I’ve started more meds and am getting enough protein in me lately. If I stop any of my meds tho I feel worse. Im sensitive to histamines too.

I’m on Prilosec, Pepcid, Claritin, Singulair, Phenergan, Zofran, Simethicone, Meclizine, scopolamine patches, Bentyl, Linzess, motegrity (just started that one less than a week ago), and aprepiptant sometimes that one my doc has been annoying and sending in no more than 4 pills at a time 🙈

I stick pretty strictly to a gastroparesis diet but the noise and aching abdominal pain is still rough. I’m trying to train myself to eat anyways with higher levels of nausea.

Anyways, domperidone is next. But I don’t know what to tell my doc cause yeah the meds help but also I feel a hell of a lot worse than I did a year ago. It’s just getting worse and worse which is why we started adding meds in the first place. I can’t imagine how bad it would be without my meds.

Weed is the one thing that provides significant relief but I obv can’t be high at work so it’s only an evenings and weekends thing, and it’s hard to get high enough for relief while still being functional. I’m barely functional as is, all my energy goes to my job. I take every single one of my meds around the clock like scheduled meds even tho half of them are as needed, and the hour before phenergan is due is always the worst.

Does anyone else have a hard time figuring out if meds are helping? I never get massive relief so it’s hard to figure out shit. What’s the process been like for you with trying different meds?

(33m) I’ve been given 2 choices from my GI doctors and that is feeding tube or Botox. I have mixed feelings about both of them I don’t want a feeding tube but I have also read statistics about the procedure and have read on here others experiences but it’s so 50/50. Both options are just till I can get into see specialists for GP in January. I just don’t know what is my best options because they both suck but so does feeling like this all the time

my doctor gave me the liquid version, is it any different works faster etc..

Been in the hospital so much recently :( I feel so defeated

I have been diagnosed with Gastroparesis

Like many I have difficulty swallowing food

I’m told I have Oesophogeal stricture and am due to have a dilation procedure.

Any one tell me if it is worth having

(F27)(127lb) I've had GP unknowingly for years now and got officially diagnosed last October. I can't tolerate any red meat, lard, grease, most dairy products depending on the fat content and most American breads. Chicken and fish are more tolerable but for the most part I just avoid all meat because just a little bit of protein makes me feel like I've eaten an entire Thanksgiving turkey and it's super painful.

Super dry cheeses in low amounts is alright, like parmesan. I can also handle skim milk in lowamounts. Just a little bit if it's in coffee or something. It's weird and I don't understand it. Anyway, lately I've been having this issue where my nails have become super duper brittle and my hair is also falling out a little bit. I have to be careful when my hands are wet or else my nails will scale, crack and split apart. My hair is not falling out that much but it's enough to bother me, I can tell that it's slightly more than average. I'm wondering if the inability to eat meat is connected to my nails falling apart and if any one else has had similar issues?

(Labs are normal)

So a few years ago I started getting bloated, like really badly after every meal. First I thought it would go away by itself but it kept getting worse. (Didn't know yet it was gastroparesis)

I was never hungry anymore, was feeling nausea every day, stomach filled with gas..

So I went to my Doctor and he send me to somewhere else to get a scan but they found nothing wrong, then I went to the hospital and did some check ups. Checked for lactose intolerance and gluten but everything was fine. A few days later they did a gastroscopy (worst feeling ever) but they also found nothing. So they tried one last thing, I had to come on an empty stomach and eat a little bit and go between a scanner every 30 min for like 3 hours. They found out I took me more then 3 hours to digest something what normaly takes likes an hour for other people. So thats when I found out I had gastroparesis.

They said there was no cure but to take some heavy ass pills for the rest of my life, ofcourse I didnt wanne do that cause I already felt horrible every day and that wouldnt really solve the problem.

At first I didn't know what to do so I did some research like evryone else on google and youtube and I've read it could be the vagus nerve that was damaged (makes the connection between the brain and stomach).

I went to a chiropractor every week to maybe try and solve something but I didnt really help, but one of my chiropractors gave me a diet. Tried it and felt better for a few weeks but then it came back.

So the next thing I did and I don't know why I didn't do it earlier was go to my best friend. He was a personal trainer first but studied allot more after that, everthing from your brain to your intestines and so on.

So the first thing he also said that it could be my vagus nerve, so he did allot of special treatments on me. From laser therapy and some brain training to using cold therapy and using vibration on my vagus nerve. I had to take some supplements, stick to a diet he made and go to the gym.

I felt ALLOT better but sometimes I still had a day I felt like shit but better 1 day in 2 weeks then everyday. So like a half a year goes by and went for allot of checkups and some changing in diets and workouts and I was feeling better then ever but the last few months are the best. I've been working out for like 2 years now and he suggested for me doing a "cut" (shredding down allot of fat) for a few months. And I haven't felt bad a single day. Now I'm still following a diet but every 2 weeks I can eat whatever I want for 1 day and even then I feel really good after eating like shit.

So all of this worked for me but those things worked for my body and it might be a bit different for other people (you might have to avoid different foods) You can ask me anything you want if you have questions, but the best thing I can suggest is go to my friend and maybe he can help you too!

PS: My friend travels to allot of countries to help other people but they also come from other countries to him so he is really busy and making appointments with him isn't the easiest.

i’m in hospital fairly often and for the past 2 weeks have left and come back same day/day after. 4th stay. had G-POEM 15th oct, liquid diet made my blood sugars go sky high then drop low (due to the fortisip drinks i was prescribed), also i was barely having anything to take much insulin. was in hospital very next day after poem with DKA. gastroparesis flares always mean a DKA (or at least high ketone and very sick) admission/visit to a&e.

i was curious if anyone else has any issues with the way medication is administered? oral meds don’t work for me at all and slow infusions or subcutaneous injections aren’t effective either. i take morphine 10mg IV and cyclizine 50mg as an IV push, this is in my care plan.

these meds are the only painkillers/anti-sickness that actually work for me, and they have to be given as IV injections or they’re just ineffective. for some reason hospital staff ALWAYS seem to have an issue with it and i find myself arguing with them to simply follow my care plan. i always get questioned why it has to be given that way, i get accused of “drug seeking” because of it, the dirty looks and nasty comments from certain nurses/doctors. it just really bothers me.

like i’m sorry my body doesn’t work and isn’t normal??? idk what to say?? it’s legit in my care plan how it should be given and i STILL get judged?? like bruv i don’t wanna be here, i don’t wanna need this medication, it’s literally my birthday ffs i just want to go home

She’s been sick since Sunday night. I don’t remember it being this bad before. I share 50% custody with her dad. I worry about dehydration. She’s urinating as usual and staying hydrated. Took her to doctor on Tuesday, she also has a cough. When to worry?

Cant absorb it orally.

Hi, Im a 17 year old girl in Alabama, and I just got diagnosed with mild GP - my stomach overall empties normally but in the first hour only about 4% passes into my intestines. The only other physical medical conditions im diagnosed with are hashimoto's, IBS, and some completely irrelevant stuff. I'm just wondering if I should press my GI doc more, and if anyone knows how to help with some symptoms??? Basically ever since I was a kid Ive gone through phases where i throw up and am nauseous everyday. It's happening again and its messed up 2 jobs and my junior and senior years big time. Lately its been straight yellow bile (which always happens but normally after all the food is out). My stomach hurts constantly, I always have reflux, I cant sleep, pressure on my stomach always hurts, and i burp like a shit ton - like embarrassing. I'm also never hungry and get full fast. A month or so ago I had this weird episode that lasted about 2 weeks where i had reflux all the time, my chest and throat hurt really bad, i couldnt breathe or swallow without it hurting and catching in my chest - i also got winded super easily, like from just talking. What do you guys think??? Sorry if this is abnormal on this sub, Im not really sure who to ask, just want to know if i should be pushier with getting my parents and doctors to do something

I get burning pain about 2 inches above my navel and sometimes over to the right side. doctors cant figure it out. happens after I eat about 2hrs. burns until I'm done digesting then it starts to get better which takes 5-6hrs. I also have EPI and take enzymes with every meal.

I have an appointment with my gi dr on 11/27 and she did a test on me and it showed that there is something wrong with my stomach muscles.

I am worried she will suggest surgery or a feeding tube.

I am scared.

Has anyone's GP mentioned Behcet's? I was just recently diagnosed with gastroparesis in September after 6 mths of being tested for everything else. Since April, when my symptoms started showing up, I have started running spontaneous fevers. Not sick at all, just feverish. I have always dealt with painful swollen joints since I was a kid (49 years old). I have been tested multiple times for arthritis and gout, all negative. I did notice that there is same articles that say Behcet's can cause gastroparesis. Anybody else dealing with this?

im losing really big wads of hair any time i touch or loosely pull it back, and showering is.....terrifying. i have quite long (butt length) and thick hair, so im used to some normal hair loss, but the past few months have been extreme. im even starting to notice a bald spot forming where i let my bun rest and I often get pain localized in this region. ...does anyone have tips on keeping hair on their head? is it time to chop it off, or will that make this worse?

Hey all!

So, after having symptoms for over a year (and having my gallbladder out last year, which my PCP thought was causing all these symptoms) I was officially diagnosed with grade 4 GP fairly recently. And I've been in a heck of a flair up. I started a new job in August and I've already missed so much work going to doctor's appointments, calling out because I couldn't get off the damn toilet (because my GP seems to flip flop one day to the next between constipation and diarrhea), and, whatever the hell is happening this week.

This week has been a whole other bear. I don't know what's going on. I'm doing everything the same as normal - eating small meals/snacks when I can, largely relying on protein shakes, working on getting enough liquids. I'm staying current with my non-GP-related meds. But my body feels... terrible. And not in a way I recall it ever feeling before, and not in like a seasonal sickness or cold or flu way. I've called out twice this week, and I feel genuinely terrible about that, too, because we were understaffed at work, but I could hardly get out of bed those days. I feel like a shell right now? Mentally I'm mostly okay (and I have a therapist and everything) but physically I just. Am exhausted and feel so, so disgusting. I don't know what to do, or why I'm feeling like this, specifically.

I haven’t tolerated a solid in two weeks. I’ve kept two boost high protein drinks down, but other than that? I’m sipping ginger ale and sprite. I get iv fluids twice weekly with nausea medicine, and I went to the ER Thursday then Monday. Both days? I had thrown up medications and had seizures. They keep saying my labs are good, which some are and some aren’t. I’m trending down, with protein and ketones in my urine at this point, and that’s with the iv fluids.

I just want to be admitted and sorted out. Eating anything or drinking to much or even at all somedays, is punished brutally. I’ve pulled neck and shoulder muscles.

It’s so hard. My GI doesn’t take it seriously, my symptoms and test results fluctuate. His PA is wonderful and I’d rather she treat me. She’s new but I cried happily upon meeting her.

I don’t know what I expect from Reddit. I’m just struggling with tingling and dizziness along with crying and shivers. I can’t think clearly. TMI but when my bowel movements came back after a few days it was infrequent but awful diarrhea. I don’t care if they want to do another scope, sign me up, just fix this.

17f here. I just got diagnosed today and have silently been lurking in this sub as this has been a suspicion for a few months. I have all of the typical symptoms of gastroparesis (nausea, vomiting, pain after eating, bloating, etc)

I met with my GI doctor today and they prescribed me erythromycin. I asked them if we could do a gastric emptying study but they said it wasn’t necessary and they would rather treat the issue.

I’m almost 100% sure (as are they) that I have gastroparesis but I found it weird they didn’t want to do the study considering it’s not invasive.

I was seen at Boston Children’s so it’s not like I’m seeing shitty doctors. These are the best of the best.

Any thoughts on this?

Hi! Im in the midst of a bad flare and cant keep almost anything down. I had an appointment this morning with my GI doctor and I'm starting Erythromycin again as a last resort (I've already tried 12 medications for my GP) while I wait for my first botox appointment in early December. But I really can't survive off of the 1-2 bites of plain food a day. Any more than that, and I start throwing it back up. Liquids have no luck either, I can barely keep down water. I don't really want to go to the ER because last time this happened I had to go 8 times within 3 months (told each time to go by a doctor) and was hospitalized for a week and they basically shrugged and discharged me. No solutions on how to get nutrition, was told to just breathe. I had lost over 30lbs in 2 months. I was admitted for high ketones but my blood sugar was perfect (100 mg/dL average) and they would refuse to consider it was starvation ketosis and not DKA (I am type 1 diabetic but it's not what caused that) despite the lack of a high blood sugar. I'm pretty sure they thought I had an ED and not gastroparesis. They said I had rumination syndrome and because I threw up a lot my muscles were used to it?? And told me to breathe. And then discharged me while I arill couldn't eat for another month when my flare started to resolve. I asked my GI doc today what could I do to help to keep food down until December and he said to take the Erythromycin. It helps with nausea but it doesn't stop me from throwing up. My PCP suggested a NG/NJ tube while I go through a severe flare in the past but no ER doctor or GI doctor wants to do that for me. Last time this happened i had hair loss, my cognitive function declined, I couldn't go anywhere as I was vomiting all day or dry heaving from nausea, and it took MONTHS to get my body back to normal. Chunks of hair still fell out for 8 months. I don't know what to do. I don't WANT a tube, but I'm barely living. Why doesn't anyone want to help me live until December when I can get the botox? Any advice on what I can do in the meantime?

I just wanted to throw out there in case it helps anyone else: Yesterday I went to my acupuncturist for my gastroparesis and overall long covid symptoms. I left my appointment feeling completely out of it. He had me all hooked up. During the appointment I felt my stomach gurgle and move. Last night I had green beans and a small portion of Mac and cheese. This morning I had a small bowl of Cheerios. Took 1 pepcid as precautionary as well as my digestive enzyme and probiotic. So far so good. I’m taking it slow and my other long covid symptoms are still there. But I am rejoicing that I was able to eat something small that wasn’t a shake. Acupuncture doesn’t work for everyone, but if this could help one person… nobody deserves to suffer like this

Hi my bloods have come back all over the place

Particularly my folate which is really low

Docs put me on 10 ml of Folic Acid solution to make it easier on my throat

Anybody had similar issue ?

I'm getting the G-POEM in December! Part of that is having to go on a liquid diet for two weeks. I usually eat solids so I'm pretty concerned about how much weight I'll lose during those weeks since I already can't maintain my weight.

What liquid foods do y'all eat? I think I'm going to get really tired of ice cream. I'm planning to order some of the Kate farms drinks since they're nutritionally complete.

I’m struggling massively and my worst is defo orange juice….

Celery is another big one for me.

Not sure if I spelt those right, but do any of you have either of these?

If so, at what point into your gastroparesis did you get one?

I

(M24) so, I don't know how to word this, but I've been having symptoms since February (2024) only recently getting diagnosed a lil over a week ago. I feel like life has almost stopped in a way. Last year I spent it losing weight, and being outside, I was relatively happy, even conquering a lot of my depressive/anxiety issues I was struggling with since like 2018. However, what was supposed to be a new happy year, quickly turned into constant stomach pain, bloating, fatigue and just feeling unwell 24/7. I often spend most times in my room, feeling like I have brain fog or just physically weak. I feel like my whole life has stopped, so I can make room for this condition. I know brain health is linked to gut health, so I know why I feel this way, but still, it's miserable. Do any of you guys feel this way? How do you cope? What gets your mind off it?

hii i was recently diagnosed with 22% retention at 4 hours. my main symptoms are bloating and early satiety. my doctor wants me to try motegrity bc i told her i was worried about the reglan side effects. but i read that this is mainly used for constipation. i have daily bowel movements, sometimes multiple… if i take this would my asshole like explode??

ok but my real question is has anyone taken motegrity while not constipated and what was your experience?

I am not encouraging anyone with gastroparesis to get this surgery. It is dangerous, and it caused me some of the most acute pain of my life.

But!

I'm only just 2 weeks post-surgery and digestion is so much less painful, even though the liquid and pureed foods I'm eating are very similar to what I ate before. I haven't vomited a single time. I've only felt nausea due to the pain early on and when I tried some overly spiced lentil soup my stomach isn't ready for.

I used to feel nausea that was extreme just walking to open my front door or making a long phone call. I'm actually feeling hope that I will be able to resume PT, cook and eat family meals, or even eventually return to work if this trend continues.

Due to other medical complications, none of the other treatment options were acceptable to my doctors, largely due to an increased stroke risk. I can't imagine anyone being "obese" enough for this to be worth it. I truly am not encouraging this for just any patient. But if you're on the verge of needing a J-tube or TPN, I think it's absolutely worth asking your doctors to consider this option, because it is safer in comparison.

I'll try to update as I continue to heal, and I'd love to know if anyone else has experience with the Roux-en-Y and wants to second or temper my enthusiasm as I'm in less pain than I've had for years.