Hi everyone, I had a BM today and while I am chronically constipated, I was straining a bit more than usual. I am also bleeding pretty heavily today from my period. My concern is, I saw some red blood splotched across a piece of stool and only on the one. I couldn’t tell if it was from a clot dropping while using the restroom or if it was actually adhered to the stool. I called my GP and waiting to hear back. Any advice or words to put my mind at ease- hemorrhoid, fissure, etc. ? I have never had blood in stool before which is why I wasn’t too concerned considering I am on my period. TIA!

I’ve suspected for years that something was wrong with me internally, but wrote off a lot of my own symptoms in denial and mistrust in most doctors. More strange symptoms have started to appear recently, and my research pointed to endo. Brought concerns to my new OB who seems highly competent and validated the expertise I have on my body as well as what I’ve learned from research. She agreed that it’s all consistent with endo, prescribed me the minipill after running thru all the options, because that’s what I wanted to try first for my symptoms, and we scheduled the ultrasound for today.

I’m nervous for a few reasons. #1, I feel like my symptoms aren’t as “bad” compared to what most women with endo describe. Maybe I just have a “mild” level of the condition, if I have it? So that’s making me doubt, but I have had heavy bleeding the entire time I’ve had a period. I’m talking twice the “normal” range of blood loss, and basically every 3 weeks. Those 2 factors are already exhausting, combined with pain, frequent nausea and difficulty eating otherwise, recurring yeast infections, and irregular bleeding. Lately my depression has also been getting worse, I can’t keep weight on, and my moods are all over the place.

I’m also reading now that a lot of people miss their diagnosis with an ultrasound (often depending on whether or not the tech specializes in vaginal ultrasound readings) but get it confirmed once they go back for a lap. So reason #2 I'm nervous is that they might not find anything today, at least not on my ovaries, and we're gonna have to draw out this process even more to figure out what's wrong with me. I'm already missing a bunch of work just for these appointments, thank god we have great insurance and my bosses have been very understanding.

I'm just rambling at this point. I just want a confirmed yes or no diagnosis already-- I know something is wrong with my body and it's not a new intuition. I might still ask for the lap if they don't find anything today, just to be sure. Either way, I'll be trying the minipill for a while. Best case scenario here is that I just have chronically imbalanced progesterone and estrogen, and the consequences of that mimic endo. And the good thing is that these concerns have kind of spooked me awake into taking more intentional and prompt care of my health.

Im 16 and for the last 8 months I have been sick.

The short story is I get really intense nausea. To the point where I can't do anything. But since I dont throw up at first my doctor didn't take it seriously. I have gotten ct scans, x-rays, and ultrasounds. I was told I was just constipated, it was IBS but mostly it was just anxiety. Im on prozac now and it's helped but my nausea can still be debilitating. A few weeks ago it just popped into my head that this seems like endometriosis. It gets worse around my period, especially when im pmsing. Ive always had painful periods so maybe this is it?? I just have no idea what else it could be. My natural path gave me this thing called FemGaurd that I just started and I have a gynaecologist appointment at the end of august. Im desperate so if someone could please tell me if they had an experience like this and ways you manage it I would be beyond greatful.

I’ve never been diagnosed with endometriosis, but I have been diagnosed with “painful intercourse” I guess… It hurts any time i’m not on top, and even then the initial penetration hurts and feels like a huge stretch. We use condoms & lube but it still hurts & i’m always sore after. Sometimes I have light pink spotting. I also deal with what I think is IBS, but I know gastro issues can be a symptom as well. I get cramps too, lower stomach pain on both sides. My gyno has never mentioned it but I’m going to ask her about it at my next appt. Does it sound like endometriosis?

So it looks like I have some amount of Endometriosis, which is a relief.

However it appears like I had a number of other lesions that they’re calling fibro-adipose tissue and I have no idea what that means… have any of you had similar tissue collected?

I was referred to a gynaecologist about a month ago, after waiting for 2 months (my dr forgot to send my referral the first time). I called my drs office to get the name and number of the gynaecologist who I’ve been referred to. I searched her name and came across a website that reviews MDs, and her reviews are bad! Her rating is 2.3/5, and all the reviews say she is really impatient, and abrasive. A lot of them say shes rude and tries to push you out of the office. I really want to push for a laparoscopy to help see if I have endometriosis, but I’m scared she won’t listen to me. I will probably have to go through multiple gynaecologists before I find one that will listen to me. I have to get a Pap smear and a biopsy done. I also read that shes rough when doing a pap smear or a biopsy, shes really rough. I have multiple concerns, but everyone is telling me to give her a chance because it’s so hard to get in to see a gynaecologist! Its very conflicting, but I need to do something about the pain.

Is anyone else limited to how far they can stretch?

This might sound weird, but I can’t even stretch my arms fully above my head without my ovaries and pelvic area feeling like I’m ripping them😭

I’m about to go to my 2 month post op, so I will see my doctor today, but my stitches are still there? They said they were dissolvable? Has this happened to anyone else? It’s only on the left side, the right looks great the scar is almost unnoticeable.

Has anyone experienced a flare up after working out? I used to work out consistently for a year, weight lifting.. and I noticed I had cramps almost every day! I stopped working out as much, and I noticed it’s been a bit better. More manageable. I started trying to get back into my routine, but every time I workout, I get cramps and pains all over my lower abdomen.

Im just curious if its happened to anyone else? I love working out, and I don’t want to give it up. I’ll just have to go lighter for a bit!

Anyone else seeing Furr in Chattanooga?

I went to renew a prescription via the patient portal and received a message stating that they closed down and couldn’t fill it.

After doing a little digging I’ve found he has moved to a different practice in Florida.

Wtf are his patients supposed to do now? I was on a pain management plan and have 3 prescriptions through him that I can’t get refilled anymore.

I can’t believe there was no letter sent out, no communication, not a word about the closing..

I don’t have a doctor right now but I’m diagnosed with deep endometriosis through surgery and I’m currently taking birth control to completely stop my periods.

I know I should stop taking it if my period comes, but I’m having my period a lot recently so I really don’t know what to do. Should I just let it come again? Since it’s just a very small amount and it’s dark brown I’m wondering if I should just keep taking it.

1DPO from my total laparoscopic hysterectomy with bilateral salpingectomy and possible excision of endometriosis. I was diagnosed in December with adenomyosis which was the reason for the surgery but my surgeon also found and excised endo from my perirectal area. I am so glad to have all that garbage out of me! And I gave consent for my tissue samples to be used in research into the causes of adeno and endo, so yay being a part of science! I’m sore but my pain is manageable and I’m moving around well at home. I’m so so thankful I got this surgery finally.

Hello, I'm worried, I'm more than two weeks late in my menstrual period, I've always been super irregular and the truth is I haven't had sexual relations for 2 months. For 3 months now, whenever I ovulate, there is a small bleeding for 5 days, that has already happened to me two previous cycles, after the bleeding, in the next 3 weeks I have my menstrual period again, but this month it has not happened. , I'm already more than 2 weeks late and I haven't gotten my period. I don't take birth control pills and I don't know what is happening to my body, I am afraid that it could be the beginning of some disease. If someone could guide me, thank you.

Sorry a long one and not 100% sure if it’s related to my endo but need some advice pleaseee!

Had my endo surgery last Friday, they found endo but not on my bowel. I was sure they would find it on my bowel as my bowels always play up and I tend to go 5 days without going to the toilet and then I’ll go 2/3 times a day for a few days and then back to 5 days without etc.

In January I started with blood when I wiped, I went to the doctors and was told I have an internal piles, given steroids and sent on my way. Every couple of weeks the bleeding starts again and I’m using over the counter suppositories to stop the bleeding which does seem to help.

I’m feeling full after eating very little, I’ve lost about 1.5 stone without actively trying, get bad build up of gas and go really bloated. I had my bloods done in January and a stool sample tested- all of which were normal.

My question is, what’s the next step? Does anyone else get this? Surely it’s not normal to suddenly go 5 days without bowel movement to 2/3 a day and then back to 5. Please help!

I'm in the UK and think I need a lap to remove adhesions. I was diagnosed with endometriosis with endometrioma in 2013 but haven't really stayed under the care of anyone (I was 'advised' to get pregnant as a remedy!) I get occasional ovarian ultrasounds but that's it.

Having done a lot of reading I feel like I would only feel safe going to a private surgeon who specialises in endo excision. I'm not well off and I don't have any insurance so I'm trying to piece things together as best I can before booking in with them.

Is there a particular imaging that shows the implants and adhesions (most likely rectovaginal, bowel adhesions and likely bladder involvement as I'm now getting urinary symptoms)? I'd like to try and get a referral for the imaging on the NHS.

Hi guys I just feel as if I need to vent for a moment,

I am going in for my second ever laparoscopy tomorrow as for the past week and a bit I have been having intense pains with nothing helping it. I am worried that nothing is going to turn up during my surgery and leave me feeling stupid that I’m even getting it. Even though my gynaecologist said that when I was 19 it was very abnormally large for my age back then.

I also had to go to the hospital a month ago due to the same pain. I have an IUD in place as well and have had it for 3 years, and I asked the doctors whether it could be possibly dislodged yet they said I wasn’t in enough pain for it to be? Even though nothing was helping and I was guarding my pelvic area in pain.

I don’t know I am just worried that I am going to look/feel stupid if nothing appears and that this was just nothing.

Thank you

Bit of a hard one to write as it’s a painful topic for me, but I’ve basically just sacked of relationships and intimacy for the past couple of years due to some bad experience with responses to this condition.

I’d (sort of) made peace with it because, given the pain, I don’t find intimacy at all enjoyable and I can’t really keep going through the same rejection. I appreciate there are kind and understanding people out there, but going through the process of finding them just feels too much. This has left me feeling lost, though, as a lot of practical things in life are just easier with two people.

My most recent gynae asked about this impact, and when I explained she felt it was too much of my life to just cut out.

I don’t know what I’m looking for really, I suppose if anyone has any thoughts or feels similarly but has worked with it? The conversation left me feeling very raw, I guess it’s a sensitive topic and I don’t disagree with her, but the thought of going through more snarky comments and pain to try and find someone willing is honestly too much to bear right now.

Any advice?

i just woke up in the middle of the night with a sharp stabbing pain right between my pelvis. this happened to me right before bed a couple months ago too. it almost feels like a gas bubble but worse. constant dull/sharp stabbing, i feel like i can’t breathe or move.

i am not diagnosed but i just wanted to see if this sounds like a flair up. i will be going to the gyno in the very near future.

I am currently waiting on a call from scheduling (hopefully this week, and if not, next week) for my laparoscopy. I have been dealing with excruciating pain and at nearly 19, it was bad enough that my doctors had me put on birth control to entirely stop my periods at 12. I’ve had so many rounds of ovarian cysts, pain meds, and ultrasounds, and over and over again was told “it’s probably endo but no one will do any surgery on you because you’re a minor”. I turn 19 in 3 weeks and honestly, being legally an adult has been the greatest impact for my care I’ve faced EVER and I’ve been dealing with this since literally my first period when I was 11. I even once had a cyst on my right ovary that measured in at 11 cm in diameter when I was 13.

All this being said, I’m SO nervous about my lap. I’ve heard horror stories of extreme bleeding which is my biggest worry, on top of general surgery anxiety. So I guess my question is did any of you guys have similar situations as me where you take birth control to STOP your periods and then had a lap and had any bleeding? If so was it because you STARTED a period coincidentally or was it BECAUSE of the surgery? Any input or after surgery experiences would be helpful and greatly appreciated, I’m mainly worried that I have NO idea what to expect despite not even being scheduled yet (although they said they’re scheduling for late June at the moment).

Sorry this post dragged on for so long but I would really appreciate ANY input :)

my partner broke up with me yesterday, less than a month after my excision surgery, because my recovery and unknown future was too much for them to handle.

i was open about my health from the beginning and it was a serious relationship, with lots of conversations about the future where they assured me that they weren’t scared of my chronic illnesses.

they were very supportive in the months leading up to the surgery, but in the few days before they started to express how stressed they felt about how my recovery was going to affect them. i felt a lot of fear going into surgery, not knowing what would be found, so their lack of empathy made the early stages of recovery quite emotionally stressful for me.

i started to question the future but i thought we would later process this period of time and work through it together, so i was really shocked by the abrupt and definitive break up while i’m still in the midst of recovery.

i can see that it’s a blessing in disguise, and i’m glad i found out now rather than 5 years from now, that we have pretty different ideas about what love means… but it still really hurts 😔

it’s hard to explain to “healthy” friends how hard it is to open up this part of yourself and how traumatic the rejection feels ❤️‍🩹

33.2mm thickness

I just had a scan done. They said they could see cysts but they’re considered normal cysts. She said there was nothing to be seen but when she went out I saw the screen and saw 33.2mm on the thickness.

Doctors thought I had endo but what does this mean? I’ve had ultrasounds, blood tests etc and they’ve all come back normal before. I’m 22, I’m scared.

I typed it wrong. 33.2

Hi 👋 I (34F) was wondering if anyone has done the Lupron Depot shot more than twice? I had one round at 17 after I had surgery and they found my uterus was retroverted twisted and attached to my bowel with endometrial tissue. Then at 21 yo I had another round after another surgery and petitioning because it was so bad my quality of life was horrible and I was experiencing bad SI. But I remember that getting the second round of injections was a fight. I can’t remember if it was a fight with my doctors or with my insurance though. I know I had different insurance both times. Any guidance is very much appreciated.

Idk what this is but at 4 am last night I woke up to a sharp pain and water like substance came out. Is it a cyst? There was a big gush and then it's slowly coming out through the day.

I am 35 now and had always considered my pain just normal for me. I went through so many tests when I was in my teens that never came up with any conclusive results and we kind of gave up searching for answers.

My wife has been saying I had endometriosis since we started dating about four years ago. She finally convinced me to mention the possibility of endometriosis to my current primary care doctor who sent me in for an ultrasound immediately(had both an transvaginal and pelvic ultrasound). The scan itself was actually pretty painful and I could tell by the way the tech was lingering in certain areas and talking to me that they had found something.

My results came back and they are pretty sure I have endometriosis and myomatous uterus (fibroids). But ever since the ultrasound I have been in pretty severe pain. Has anyone else found that ultrasounds cause a “flare up”?

In 2022 I was able to take Elagolix for treatment for about 3 months. My insurance denied further coverage so I was unable to afford it.

I was basically left with no options, but to just suck it up. I’ve been dealing with severe endometriosis pain since I was 10, I’m now 24. I have chronic gastritis due to constantly needing and taking NSAIDs for the pain, eventually more than the recommended dosages which messed up my stomach permanently.

My OBGYN wouldn’t prescribe me anything stronger than Naproxen which was the biggest slap in the face. Since stopping Elagolix, I began taking the combination birth control Lessina and after about 3 months of taking it consistently, my periods stopped being irregular and it reduced my endometriosis pain about 70% which was amazing to me.

I’ve been on Lessina for a year and a half, however my new gynecologist needs to check my hormones so I stopped it two weeks ago for blood tests tomorrow.

Endometriosis pain was an everyday thing before the birth control, except for when I got my periods. Since stopping it two weeks ago, I am severely bloated and in pain. My back and pelvis, especially the right side hurt like crazy.

For sure I’m not constipated, but idk what to do about this pain and bloating. I look 7 months pregnant. I don’t miss this pain, it has negatively affected my life for so long and the thought of it legit terrifies me.

I (34F) am so furious at life and the United States health care system. Sorry if this is long. Back story I got my first period in 5th grade the pain was so bad a passed out. I bled so heavily my mom was so concerned she brought me to the hospital. They basically told her that I (an 11 year old girl) had heavy period and bad cramps because I was over weight (by 15lbs) and need to exercise more. I bled for 8-10 days every month after (and still do). Every month became torture the week leading up to my period I’d be in debilitating pain and when it finally came I would bleed so heavy I’d have to wear 3-4 pads at a time. I couldn’t go to school. By 9th grade I was missing 2 weeks of school every month. They were threatening to not pass me. Doctor after doctor. Gynecologist after gynecologist all just telling me I’m being dramatic, maybe I just don’t like school and I’m lying, I need to walk the pain off, one after the other. It was disgusting. I stopped eating because maybe if I was underweight they’d take me seriously. One doctor when I was 12 actually looked me in the face and said oh honey it’s a shame you aren’t older we could just put a baby in you that cures it. Like what?!?!? I’ve lived with that lie my whole life. I’ve had laparoscopy after laparoscopy, rounds of that prostate cancer shot twice ( which they totally lied about and said was the same as a birth control shot comparatively). I have been made to feel insane like I’m a liar that I am causing the pain to myself. Told I could never have kids. And yet I miraculously got pregnant on my own twice. While on birth control (cause they all stop working after a certain period of time) and that lie that little lie I’ve held on to the light at the end of the tunnel “oh if you have kids it’ll cure itself” it’s not true!!! I’ve been on constant continuous birth control since I was 12 years old. All of them. Because they stop working after a while. Well after my second son I developed hypertension and became a stroke risk in hypertensive crisis. The first thing they did was tell me I can never take birth control again. (Im not overweight this time so at least they can’t blame it on that) My husband got a vasectomy cool. But I forgot after two pregnancies and decades of birth control how bad it is. I’ve been off the birth control for about a year now and each month is filled with a new torture. The pain is excruciating and knocks me off my feet. I’ve now delivered two children and can 100% say I want to go back in time and kick the ass of all of those doctors and medical staff that were so horrible. The mental health and eating disorder issues could have all been avoided if maybe one person had taken me seriously. Sorry for the long rant. I’ve been holding this in for a long time. And also anyone has any suggestions I am all ears. I’m looking into maybe getting a hysterectomy but I heard even that’s not a guarantee?

For the ladies who no longer have a cervix, did you find your orgasms reduced in intensity after surgery?

My mum had her hysterectomy 20+ years ago and had always said she wishes someone had warned her that her orgasms would be less intense after. However, she is the only person I've heard this from and I can't find much support online.

My die scan shows I have potential bowel lesions, and endo near to the back of the rectum. Interestingly my colonoscopy came back clear.

I won’t know 100 percent the extent of it until surgery, which may be a few months off.

Does anyone have severe constipation? I’ve had it for years, and now I have stomach spasms and pains even more.

I’ve tried low fibre, high fibre, medium fibre, fodmap, laxatives, magnesium, no dairy, the works.

The only thing that remotely helps me is coffee or chili but even then it’s not foolproof.

I honestly feel like I won’t feel normal until I get surgery.

I hope this is allowed but if it’s not, moderator please take it down. Right now, I’m needing words of encouragement. I think the endometriosis is getting worse and growing fast. The past month I’ve just been spiraling into a dark space, been thinking negatively and just have been sad. My symptoms are getting worse, I’m vomiting a lot more, struggling with a lot more pain including nerve pain. My hip/kidney area has been bothering me to where I’m losing sleep or crying myself to sleep. I think maybe I’m overwhelmed and quite honestly, I’m stuck on what I could do to manage my pain especially that nerve, shocking/stabbing type of pain. 😢