I am into technology. And already like too relax my eye's, and have had thyroid eye fisease where my eye's burned, and turned out. Now they're doing the opposite. I've been HoH since my car accident in 2p12, and after TMJ jaw surgery. I have a persistent tinittus, and believe I have hyperacusis. I already went to an Urgwnt Care, and too an ENT. And have from unilateral HL (perforated ear drum, and lots of scarrimg from sear infections), too now a bilateral HL. I already had an information packet from Cochlears america. I'm just interested in the best array option. For havimg woken up deaf from impacted cerreum, and getfing vacummed it took a few days too return to normal. I already had thqt weird robotic sound w/o an operation, or implant activation. Just want too know which one can upgrade, or have more programmablw, or betfer firmware option(s). For I don't mind the size, or weight, for I'm getring botox soon too correct my squint, or cause one too have an comittant esotropia for 3 or 6 months. I don't mind to distract from my wearing cochlear(s). And had Insurance cover the initial need for a bimodal setup? I'm leanimg toward Med El, or AB (Advanced Bionics), as it seems like everyone for what I can find on social media has the other(s). I'm also lookimg for mentor(s), or any stories of losing residual hearing, and/or how much they gained upon training. (And how long it took.) And/or any hybrid setup(s) that one could recommend, or detract from gettimg. And has anyome gotten a mold for there's hybrid, or non-even tho to keep secure to one's head. (And does all three five an extra outer processor?) What's the most notoceable one, or lomgedt battery life? Sorry for if I have double vision. Had anyone gone through a before, amd/or after needed VR, or (VOR therapy)?

Please offer your opinion on my choice: If I have my surgery done in February as scheduled, I will have 3 months off work for CI implant and recovery. If I wait until October I’ll have closer to 6 months off work. My job involves lots of interaction with the public, in person and on the phone. I’m reluctant to postpone surgery and miss out on those months of improved hearing in the implanted ear but Im afraid that 3 months after surgery may be too soon I really don’t want to struggle too much at work and become discouraged or down about the CI. Anyone have any thoughts or advice (kind only, please)Thanks!

My 81 year old mother recently had CI surgery, and her activation appointment is next week.

I have read through the posts about expectations for hearing etc at and after activation and found those very helpful.

We are wondering what to expect at that appointment, meaning what do they do during the activation appointment, how long does it take, etc.

Hello everyone. I am 2 weeks away from my surgery for a CI. I have to say I am a bit nervous. I have been following this Reddit for a while and read all the stories. I think I am physically ready for the surgery.
I have make my pre surgery check list. Thinks I need to do and bring for the post surgery. I have to travel so my wife and I have to stay over nigh in the city after surgery. Hope I got everything I need. Mentally I am not so ok. I have a lot riding on my CI to improve my quality of life. I need to hear my wife and sons better. My job also depends on my ability to hear better. Any additional loss of hearing I have will have a negative impact on my mental health. But having said this I know it won’t happen over night. Going to take me a while to retrain the brain. Wish me luck and I will update you on my progress

Implanted on Oct 31st, activation is today (Dec 4th).

It's been a struggle to have lost the residual hearing on my implant side, my crappy hearing suddenly getting 50% worse was not fun but that month is over. Off one struggle bus and onto another!

It’s the end of my first day with the implant activated. I’m a bit disheartened. I’m kind of having a bit of a hard time getting used to it. How long did it take for you all to become accustomed to it. Any advice?

So i have been trying to get new batteries for my nucleus 7 cochlear implants because 2 of my extra ones finally died on me even though I would swap them out. I tried to get new ones and battery holders around Halloween. Just last week I get an email from cochlear saying they have the wrong doctor on file even though they have done insurance authorizations for items before. I give them the information after they asked me on November 27th. Now I am at a point where I desperately need a 2nd battery because I'm bilateral and I work. Idk what I'm going to do if I only have one implant working and it doesn't last my whole shift. I'm very worried at this point cause this has been over a month now.

Hi, I’m wondering how well everyone’s processor connects to their head. I was activated about 2 months ago and just this week I’ve been able to wear my processor without a hat or headband to secure it. For the past 8 weeks or so I’ve literally had to strap it to my head for the 15 or so hours a day I would wear it. I shaved my head, tried wig tape, am using the strongest magnet, etc. I’m overjoyed that it’s starting to connect better.

I was not expecting it to take this long to connect (it still falls off semi often).

I guess I’m wondering if anyone else struggled with this for any length of time, how long did it take to improve (and how much did it) and how often does your processor disconnect throughout the day? My surgeon said it could take 6 months to keep improving. I’m just trying to manage my expectations as I’m really hoping the connection gets stronger.

Thank you!

I'm trying out music now and am finding it poor, but it does seem to get a lot better over time - at least for me since activation five weeks ago. Marvel AB.

Deep bass sounds, however, are like a feeble snarl. For example, the song, "Don't Leave Me Now" has some terrific bass - one of my favorites from Pink Floyd "The Wall", and it sounds like shit.

Is there any hope for me?

I'm being activated Monday. I lost my hearing suddenly in April, so seven months ago. The hearing in my other ear is excellent. Because it's only been seven months I'm wondering if by some miracle I will just be able to hear as I always did. Please feel free to shatter my dream.

Hello all! I’ve been on the phone for hours with my insurance company BCBS and have yielded it very little answers on my fiancé’s behalf.

My fiancé is from the Netherlands, and he already has a cochlear implant. Whether or not he will get good coverage. Here is one of the main determining factors and rather or not he will be moving to me or I will be moving to him. The man I spoke to on the phone did not seem very knowledgeable and they are supposed to call me back tomorrow with someone more experienced, but I figured I would just hop on here and post a list of questions that my fiancé sent me.

Just trying to get an idea here of what we could be potentially dealing with insurance wise. Any personal experience would be appreciated. Thank you. I’ve attached a picture of the list to this post.

My daughter has had an Advanced Bionics marvel CI for about 3 years with no issues with static shocks. We were warned by her audiologist that we need to stay away from static charges. I'm wondering if anyone has had actual experience with damage occurring from those enclosed tube playground slides, or other sources of excessive static.

We try to keep her away from those plasma ball desk toy things, science museum interactive static electricity (Van De Graaff generators, etc), direct lightning strikes (ha), and anything else that involves arcing electricity.

It is not a serious impediment to every day life by any means, but I'd like her to be able to participate in as many socially inclusive activities as possible :)

I would like to know how you hold Rondo 3 so it doesn't fall. Any definitive way to avoid losing it?

The iPhone has a built-in app that provides captions for phone calls (Live captions in the accessibility menu). I find it works “ok”. There is a short lag between the spoken word and the display of it (understandable) but it also misses quite a few words altogether. Hence, I am curious if there are better solutions. There are also a multitude of captioning apps in the App Store. Anyone that has used these can you provide some feedback on the quality of the app?

Hi everyone,

It's me, once again. I have a choice of getting the cochlear implant at Stanford or UCSF. Has anyone had the cochlear implant at either one and would recommend them?

Also, are you happy with your cochlear implant? If so, what brand do you have. If you are unhappy with a brand, let me know (please!).

Thank you everyone. This subreddit is so incredible.

It’s been one week (since you looked at me) since I had my surgery. Vertigo seems to be getting worse every day. Anyone else have experience with this or any advice?

Hi Everyone, I am a 60 year old male getting qualified for CI. Everything looks to be a go. My question for your collective wisdom is the following:

I am an avid mountain biker, trail runner, and backcountry skier. I know initially there are commonly equilibrium or balance issues, but I wondered if anyone here has had issues doing any of the above sports or other more extreme things like climbing, kayaking, waterskiing, etc, once you have become accustomed to your CI. I'm all ears (pun intended).

I currently have the RONDO 3, and am considering getting the SONNET 2 for sports activities, so I can wear a bike helmet and wearing work safety gear. I have SSHL on my left ear, and have the Rondo set up for that side.
From what I understand only one procesor can be set up at a time.
However can the Sonnet be set for the right ear? That way I won't have to pair which audio processor I will using for the day. Hope my question makes sense! Thanks!

My 3.5YO deaf son who is generally nonverbal but signs has a CI on the right side. Over the past 1.5 months he has been removing his processor more and more frequently at school, which generally I had attributed to needing a break. More recently however I noticed his coil was harder and harder to find connection with his magnet and change his light on his processor from orange to green. I would feel the magnets connect, but finding a connection would become tricky. Finally it wouldn't connect at all- I went ahead and switched out the coil and connection issues all resolved. I never received coil fault messages through the cochlear app, and he was not able to articulate to me that there might be an issue.

My question- leading up to his coil actually failing what might it have sounded like? Would it be enough to not want to wear it? In the future, what can I do to better understand or anticipate it might be happening again? Thank you for any insight!

His ASL is improving by leaps and bounds, so I'm hopeful if this comes up again he'll be able to communicate with me and let us know that way, but if it's possible to help understand on my end his processor's nuances it would be helpful since I obviously can't hear what he does.

So I found this link for someone in another sub but it's useful to post here.

Apparently in the US there is medical care coverage for people who are deaf.

https://mhanational.org/paying-care#coverage

I suddenly lost my hearing in my right ear almost a year ago and I might be getting a cochlear implant soon. I also got tinnitus due to losing my hearing. I was wondering if anyone’s tinnitus completely went away when they got cochlear implanted. I know everyone’s experience is different, I’m just curious.

Good morning everyone. As a future recipient of a cochlear implant (January) on my deaf side, I was asking myself some questions of a purely practical and daily nature that I would like to submit to you. I was wondering if in the summer, during very hot and humid days typical of my area (northern Italy, very humid and temperatures that in recent summers have almost always been above 30 ° C with peaks of 36/38 ° C) doing light sports activities, such as walking, in which however you sweat a lot, you are exposed directly to the sun, and a lot of heat emanates from the head, there is the possibility that the processor may suffer damage and for this reason it is worth not wearing it temporarily during these activities. Thank you very much for the answers

Hey guys,

I'm 5 days post-op and I can't decide which soundprocessor would be the best for me. I have two options: Kanso 2 and Nucleus 8. I live a pretty active life (hiking, camping, cycling, skiing) which I don't want to abandon so Nucleus 8 seems like a more secure option. However, I'd love to finally free my ears after 27 years of wearing hearing aids and I love the disrection of the Kanso 2.

So my main question is that could Kanso 2 prove to be suitable for an active lifestyle? Can I wear helmets, hats? Is it possible to use powerbanks to charge the Kanso?

Thank you in advance!

I'm able to stream, bluetooth is working fine, but I'm not able to use the AB remote app. It doesn't connect & I can't change programs. Does anyone have any suggestions?

I got my CI about a year and a half ago. It was a really hard adjustment for me and to be honest I wasn’t wearing it much because of all the whistling and tinnitus it was giving me. I decided to try it again and have been wearing it for at least 10 hours a day and streaming to my CI when watching tv or YouTube videos. I notice that I’m still really struggling to understand speech. I hear sounds pretty well but barely speech. I read a lot of people hear speech right away or it takes them 3-6 months to do well with understanding speech. I know not wearing it much in the beginning hurt my progress but I would think that I would at least be hearing speech a little bit better by now. I’ve had hearing loss since childhood and never wore hearing aids so I’m wondering if I was even a good candidate to even get a CI to begin with. Is it possible that I might just hear sounds and never hear speech? It’s not like I’m not hearing any speech at all because I do notice that I’m hearing slightly better when people are talking but I’m still missing a lot of what’s being said. I still need to used closed captions on everything, captions for phone calls, and when I go out to appointments. I was expecting this to help me not rely so much on these things anymore but that’s not possible at all. Any advice appreciated. Feeling so discouraged and frustrated.

Hello! The Discord invite has expired; could you post a new one??

I have been SSD for nearly 20 years and I am considering CI. I would appreciate reading the experience of CI users who were SSD for a long period (maybe 10 plus years). My right ear is about 90%. Thanks!

I wonder how you hold Rondo 3, I don't have it yet, but I'm open to ideas. I have thought about putting fishing line on Rondo 3 and then a pendant and putting the fishing line into the holes of the pendant, so I put on the pendant and then the processor. A pendant like the one in the image, can you do what I have in mind?