/r/Amblyopia

Photograph via snooOG

Amblyopia, sometimes known as "lazy eye", is a condition of the visual system that is caused by lack of data input through the optic nerve resulting in underdevelopment of the area of the brain that processes visual input. This reddit is meant to be a place to discuss diagnosis, treatments, and hopefully recovery. Feel free to share your stories.

Helpful links:

/r/strabismus

/r/Amblyopia

3,822 Subscribers

1

Wanting to be a pilot with amblyopia

I’m wanting to be a pilot After high school and wondering peoples paths on getting there medical , my right eye is 20/20 and left is 220/20 , wondering if they would still accept me ?

0 Comments
2024/04/09
05:15 UTC

2

The risk of trying to improving strabismus

I have strabismic amblyopia. I had strabismus surgery as a kid and my eyes are somewhat aligned, but visually noticeable. If I get them to focus on the same object I get double vision.

I'm making some assumptions here from how I think it all works so please correct me if I'm wrong. My eyes could wander somewhat when I was a kid (post-surgery) but they now always keep the same position in relation to each other. My assumption is that weak eye muscles is the cause of this (because the muscles aren't used to work because they have no reason to) and why I now can't cross my eyes or move them in a different direction relative to each other even if I try. I do feel muscle straning around the eyes if I try to cross them, which makes me think it would be possible to exercise it to gain the capability to have the eyes work together by centering at the same focus point.

I have tried to improve my amblyopia but quickly realised that all it leads to is double vision. (still comforting to see that improvement is possible to the amblyopia).

The risk I see in all this is that if I try to improve the strabismus I would work the muscles and the eye might start to wander again (because it would be able to), something I would rather do without. I also worry that trying to improve the strabismus would be uneffective or improve the amblyopia quicker than the strabismus and I'd get double vision (which would obviously be horrible).

I guess my question is if others have been able to improve their strabismus without unintended consequences?

0 Comments
2024/04/08
17:21 UTC

5

Locating a provider who can treat adults.

Hi, guys. I'm a young adult who has strabismic amblyopia. I'm interested in exploring options to get my left eye some improvement. How did you guys locate an ophthalmologist who treats adults? I live in New Jersey if that helps at all.

15 Comments
2024/04/07
13:51 UTC

7

So, vision therapy successful or not?

Have people tried treatments here? Where are you at with it?

0 Comments
2024/04/06
01:52 UTC

1

Eccentric fixation

At age 5, I had cataract surgery for sensory deprivational amblyopia and exotropia in my right eye. Two years ago, at 21, I had strabismus surgery which caused slight esotropia. Recently, my therapist noticed I have eccentric fixation and a positive Kappa angle. I'm unsure if this is due to deep amblyopia, the squint surgery, or if I acquired it during vision therapy. What should be my next steps to address this? How can I determine if I'm using central or peripheral vision during therapy?

Would strabismus surgery fix the eccentric fixation?

0 Comments
2024/04/04
23:47 UTC

5

Amblyoplay?

Hi 26 year old here have had poor vision in right eye since I was a child right also had a artificial lens implant after cataract surgery as child. and can see very well in left eye. Right eye is very lazy hypertropia and blurred vision since. I have just joined amblyopia play with 3D glyph glasses if any chance I can improve the right eye using the software. Not sure if I should close the left eye and keep using the weaker eye in the games as both eyes struggle to work with each other.

1 Comment
2024/04/03
21:28 UTC

1

Does your lazy eye affects your normal everyday vision or it gets suppressed by the brain?(Poll)

1 Comment
2024/04/03
21:20 UTC

3

5 year old patching

Hello, I just got home from the optometrist and along with my son's glasses he is required to patch his left eye for 2 hours a day to strengthen his right. It was like night and day what he could read with his left compared to his right, he even mentioned his right was blurry when his left was covered. He doesn't have any drifting and before today he never had any noticeable laziness with how open or closed his eyelids were. It's just lazy as in weak / not seeing as well.

So he was good with his patch and wore it 2 hours on his strong left eye. We took it off about an hour ago, but his left eye, the strong one, looks lazy now. It just isn't as open as his right eye which is suppose to be weaker.

Is this a concern or was it just because his eye was patched for the first time ever, or does the left eye need to get used to patching? Will his strong left eye be negatively affected by the patching? What is going on that his good eye looks lazy after 2 hours of being patched?

6 Comments
2024/04/03
19:49 UTC

15

Can you describe the vision in your amblyopia eye?

I’ve always suspected I have amblyopia, but I’ve never been diagnosed. It looks like it is diagnosed based on exclusion. I tried a couple times to get glasses, but they do not improve vision. I’m not sure that blurry is the correct word. My eye just doesn’t focus. It doesn’t matter how close I hold something to it. It is almost like a mild fragmented or pixilated disturbance. I’m not sure how to describe it. It just can’t focus. What is your vision like and how were you diagnosed?

27 Comments
2024/04/03
14:00 UTC

7

Mark F Bear podcast on Amblyopia

I have requested for a mind and matter podcast with mark f bear.

Here is full version on Twitter - https://twitter.com/trikomes/status/1775557251224555790

YouTube he only released for paid subscribers , i think it should be free in a week - https://m.youtube.com/watch?v=JjAhC9FpyBk&list=PLrEAWLADcneY4CP2GXc-DU7af264G6xW0&index=1&pp=iAQB

I have sent following questions to the podcaster to ask Mark

Regarding the effects of long-term deprivation due to cataract, does it solely impact brain processing, or could it also affect the structural components of the eye, such as rods/cones?

What are the implications of your research findings? Do they indicate a potential restoration of vision to normal levels of acuity, or do they represent an improvement beyond conventional patching therapy?

If your research successfully restores vision to the amblyopic eye but fails to achieve binocular vision, do you anticipate practical benefits for individuals in daily life?Alternatively, do you foresee any potential challenges, considering the possibility of double vision returning? Additionally, could this approach potentially address issues like strabismus resulting from deprivation?

Is your research applicable to humans, given that it involves injecting Tetrodotoxin into the only functioning eye? When do you anticipate human trials for this method to begin, and if successful, what timelines do you envision for it to transition into real-life therapy?

Some neuroscientists, like Gül Dölen, propose the idea of reopening critical periods using psychedelics. What is your perspective on this concept, particularly concerning amblyopia?

What is your suggestion for a person in their early 20s with very low acuity seeking treatment? Should they wait for research breakthroughs or continue with current methods?

0 Comments
2024/04/03
08:28 UTC

3

Is it possible to have undiagnosed amblyopia in 40’s?

I noticed my vision was poor in my right eye when I was 12. I never went to the doctor. My older brothers say I was cross eyed at 5. That seemed to have went away.

I tried a couple times to get glasses in my 20’s and 30’s. They do not seem to help me see better. Back then I was a plus 1.5.

The eye just doesn’t focus no matter how close I hold something to it. Can you describe what it looks like to see out of your bad eye? Mine just doesn’t focus and looks slightly scattered. I’m not sure how to describe it.

2 Comments
2024/04/03
01:07 UTC

6

Stereo 3D gaming

I stumbled over a post of somebody with amblyopia asking for anaglyph games to train his/her eye.

I dont want to offend anybody. I''m really into stereoscopic gaming so I just wanted you to know that you can find some instructions in r/stereo3dgaming. Most of the setups are for SBS (side-by-side) 3D, which require either 3D glasses like r/xreal, some VR headset together with e.g. Virtual Desktop, or to use r/crossview or r/parallelview. But there are also for example the emulators Dolphin (r/DolphinEmulator, gamecube,wii) and Beetle VB (r/RetroArch, Virtual Boy), which both have anaglyph modes so you can enjoy all the games from those consoles. Also, the r/reshade plugin Depth3D can deliver depth-based (in contrast to geometry-based) anaglyph for many games: https://www.reddit.com/r/ReShade/comments/o3hanm/depth3d_for_anaglyph_redblue_3d_tips_and_best/

Idk if this actually helps but I just wanted to give it a shoot. Hope you all are/get well!

1 Comment
2024/04/02
22:43 UTC

8

23 years old with lazy eye - any hope for me?

My right eye has always been weaker than my left, ever since a young age. I was warned by my eye doctors growing up that I could develop a lazy eye if I didn't wear my glasses properly, and I never listened to them. Now, I'm seeing quick deterioration of the vision in my right eye. The vision in my right eye is slightly dimmer and it takes longer to focus than it used to. I regret not listening to my eye doctors as a kid, when treatments would have been the most useful, but I don't want to think it's too late now. What is the best course of action for someone like me?

2 Comments
2024/04/02
04:25 UTC

1

What do barrel cards look like

What does it look like when you look down a barrel card? I don’t have good binocular vision and I see 2 separate cards spaced a few inches apart. And I know th goal is to bring the barrels together somehow. Wondering what it tools like to other people when they hold up a barrel card. Thanks

0 Comments
2024/04/01
01:06 UTC

2

Certain instances trigger my lazy eye

Been dealing with this most of my life, depending on my fatigue levels, especially when spending long periods of time in the ocean, as well as longer sun esposure. Anybody have similar experiences with these “triggers” for their lazy eye? I broke my corrective lenses when I was small and have never gotten them replaced. For years I got away with it, I’m now 26 years old and deal with it in some way almost every day. Where do I even start?

3 Comments
2024/03/26
17:00 UTC

8

{Blog} Is amblyopia genetic?

Amblyopia, commonly known as lazy eye, is a vision disorder that affects millions of people worldwide. It occurs when one eye has weaker vision than the other, often leading to reduced depth perception and visual acuity. While the causes of amblyopia are multifaceted, one prevalent question frequently arises: Is amblyopia genetic?

Read more: https://www.amblyoplay.com/is-amblyopia-genetic/

8 Comments
2024/03/26
12:46 UTC

2

noticing objects with weak eye VR 3D video

So I have oculus quest 2 and I watched this video: https://youtu.be/dwHBpykTloY?si=fPI6jQbJUvvxVc5W. After 1:08 minute I noticed that my weak eye is also working and seeing objects on video. what does that mean?

4 Comments
2024/03/24
21:57 UTC

6

Wanting to go into LEO career.

Has anyone had any luck in joining a police department? Every department I look into had pretty strict vision requirements (understandable for the line of work). I'm looking for any one that has had any luck getting the vision better in your bad eye with therapy or surgery or whatever. I'm wanting to try anything that will help me.

My vision has never been able to be corrected with glasses and I can only ever read the big E on the chart and thankfully my good eye has always been 20/10. I'm just hoping I'm not to old or its not to late to improve it.

I never let my amblyopia hold me back or stop me from doing anything before. So finding out I won't be able to join a career I really want to do is really bumming me out.

Thank you for any replies or help.

16 Comments
2024/03/24
11:24 UTC

1

opening mouth to see better with both eyes open

Do you ever find yourself to opening your mouth to focus better or prevent lazy eye seeing side of nose? I'm reffering to people who have broken suppression / double vision(ghosting) . Even with glasses

1 Comment
2024/03/23
20:16 UTC

2

Eye surgery options

I've had amblyopia for a while, but only realized it in high school when my good (left) eye started to get astigmatism and the right eye started to noticeably drift. It's been over a decade since I got glasses (I'm 30 now) but even with them my vision is very different in each eye, 20/20 in my good eye (prescription -1.5D), and 20/40 in the weak eye (prescription +2.75D).

The huge difference in my prescription makes my eyes look differently sized, even with high index glass. I was wondering what I could do to correct my vision, or at least make it less disparate. I don't really mind wearing glasses forever, I just don't want my face to look like one eye is significantly larger than the other. (I'm not at all interested in contacts.) The double vision also makes me more prone to migraines/cluster headaches, so I'd love it if corrective surgery could decrease their frequency.

I've heard the lazy eye disqualifies me from getting something like lasik, especially since it's not an optical issue, but a neurological issue. I've also heard strabismus surgery corrects for the lazy eye, but that doesn't seem like it corrects actual vision, just the drifting.

Is there anyone with amblyopia who has successfully corrected their vision? Or at least made it more manageable.

10 Comments
2024/03/23
19:04 UTC

2

Is a covered eye better then an uncovered eye? (Writing advice)

Hello all!

I'm a disabled writer currently trying to develop a character having amblyopia with a drift and possible light sensitivity in that one eye. I don't have this specific condition, so I though it would be best to receive input from those willing to do so.

He is an adult who did not receive any form of therapy or treatment as a child, so this will affect him for the rest of his life. There will be no magical cure tropes here, even if it is a fantasy setting.

I was wondering if wearing an eyepatch would provide any actual benefit to him? While it may do so for the light sensitivity, having only his good eye open would still lead to depth perception issues. Im guessing vision in both eyes is better then only vision in one, but I would appreciate any input.

Any other input you have for things you'd consider important to consider, or even just experiences you'd want to see reflected in a character would be incredibly helpful!

Thank you for reading and entertaining a likely silly question. Cheers!

5 Comments
2024/03/23
18:55 UTC

4

Particle simulation? A visualization that has some interesting effects when i view it with only my amblyopia eye. I found fractal zooms to be helpful also!

0 Comments
2024/03/21
22:45 UTC

5

Son has a "lazy eye"

A little history: my son (who just turned 7) has worn glasses since he was 4. At his 5-year-old well check, we were referred to an ophthalmologist because his left eye was much weaker than his right. His Dr at Nationwide Children's in Columbus, OH (who was completely wonderful) suggested we patch the right(strong) eye for 2 hours a day. We did that for 9ish months. His eye improved at every subsequent check-up and eventually, he didn't have to patch at all anymore. Fast forward to his 7-year-old well check and his left(weak) eye is struggling again. It measured 20/40. I scheduled with his ophthalmologist but we couldn't get in until mid-June. Should I go ahead and start patching him again? Or wait until we see the Dr? My son has no issue patching; we just do it after school while he's doing homework/playing/dinner time. Or do I leave it as is so the Dr can see it? His appointment is about 3 months away. I just don't want it to get much worse! If he was your son, what would you do? Anyone have this experience?

9 Comments
2024/03/21
18:54 UTC

8

Stuff I learned while writing a book about my neurodivergent brain

I’m am a science reporter & I have a book coming out in June about amblyopia & strabismus among other things. As I was researching the topic, I was amazed at the amount of disinformation in the world. Even the info from trusted medical sources tends to be more complicated than necessary, almost as if someone is trying to be confusing on purpose.

So I wrote a faq. Here is the tl:dr

  1. If you have amblyopia or strabismus or both, you are almost certainly stereoblind.

  2. Being stereoblind has lifelong vision consequences— mostly deficits but there are a few advantages! Deficits include lifelong klutziness, and “crowding.” However, living in a flattened world may be a slight advantage for the painter’s & photographers among us.

  3. Surgery is always cosmetic. I pass absolutely no judgement here. But everyone should know that eye realignment surgery never results In stereovision (and often makes learning stereovision more difficult.) It just makes you look normal to other people.

  4. The only evidence -based treatments are patching and (for anisotropic amblyopia) glasses — and they pretty much only work for kids. However new VR based therapy is super promising.

  5. VR based therapy could be sold inexpensively — just like a video game. However the creators have decided to get it fda approved as a medical device — so getting access to one may be quite expensive. It will also involve getting a prescription (sort of how cpap machines are needlessly difficult to buy.)

Here’s the long version: https://www.sadied.com/stereoblind

6 Comments
2024/03/20
11:50 UTC

5

Suddenly wandering eye?

I don't know if I've posted here before but when I was 1 I got chicken pocks and a blister above my left eye busted and the liquid obscured my vision causing me to have amblyopia, I was supposed to wear an eye patch but never did. Fast-forward to now I'm 31 and still can't really see out of my left eye. Recently I was on a video call with a friend and I noticed my left eye was kinda wandering? I don't remember if it's always done that or if it's new, but now I'm super self conscious about it.

Has this happened to anyone else?

Also how do y'all handle it?

1 Comment
2024/03/18
11:48 UTC

5

Outwards left eye

Hey all,

Super happy to have found this community. Male, 28 years old. Born 2 months premature and had amblyopia in both eyes, I was pretty much born cross eyed. Had corrective surgery at about 2 months, parents did patching. Had another surgery when I was 7 to tighten muscles more. At this point my right eye is functioning 100%, it's my "good eye". My left eye is my lazy eye, it's not like super noticable, it floats outwards just a little bit (gets worse when I'm tired or after I smoke weed sometimes). My depth perception is pretty whacky and when I close my good eye I can't focus 100%, like words are a little blurry, hard time reading road signs. I do have a hard time reading, I see double sometimes. I have the ability to center my lazy eye for a few seconds but when I blink it wanders off again. My biggest question is what are my options for treatment at this point in my life. I was bullied and harassed in HS and it has obviously affected my self esteem. I am much better now but it is hard for me to have an eye to eye conversation with someone as all I can think is if they notice my eye. Can I do surgery, vision therapy? I know that patching at this age could fuck up my good eye. How do I go about getting treatment? Should I see my family Dr and get a referral or do I just make an appointment with an optometrist?

Thanks so much guys, much love.

3 Comments
2024/03/17
02:08 UTC

5

Vision good in both eyes, but only have used one.

So I was born with a lazy eye. I had surgery when I was young that supposedly fixed it, which kind of did I thought. But even after the surgery, my brain only lets me use one eye. If I cover my dominant eye, the vision is fine in the non dominant eye.

If I try to use both at the same time that's when I see double. Is there any fix to this as an adult?

5 Comments
2024/03/14
13:37 UTC

4

Why is it that sports and summer related activities exaserbate my lazy eye so bad?

I’ve always delt with a lazy eye but recently it’s gotten more consistent and noticeable. Why is it tho that playing the sports I grew up playing like basketball and soccer cause my lazy eye to get significantly worse? It also happens with yard games like cornhole, darts, etc. I lift and run regularly and these don’t affect my eye at all but these simple games where I’m not focusing that hard seem to strain my lazy eye like crazy and I get bad esotropia

3 Comments
2024/03/11
05:24 UTC

Back To Top