/r/alopecia_areata

Photograph via snooOG

Alopecia areata, also known as spot baldness, is an autoimmune disease in which hair is lost from some or all areas of the body. Small spots most commonly occur on the scalp and usually grow back within a year. A very small percentage of cases spread to the entire scalp (alopecia totalis) or to the entire body (alopecia universalis).

Alopecia areata, also known as spot baldness, is an autoimmune disease in which hair is lost from some or all areas of the body. Small spots most commonly occur on the scalp and usually grow back within a year. A very small percentage of cases spread to the entire scalp (alopecia totalis) or to the entire skin (alopecia universalis).

The cause is not well understood, heredity may be a factor

The most common treatments are:

  • Cortisol injections or creams
  • Minoxidil (Rogain)

/r/alopecia_areata

11,811 Subscribers

1

Can I still do a hair transplant after all my hair grew back?

I had alopecia but all my hair grew back, is it still possible to do a fue graft hair transplant for pattern baldness, even if you had alopecia areata? Thanks

1 Comment
2024/10/31
19:40 UTC

0

is this regrowth ?

3 Comments
2024/10/31
17:35 UTC

1

Has anyone had any serious side effects from topical jak inhibitors such as opzelura? Infertility?

Considering using this cream. Want to know if anyone has had negative experiences. I’m 35 and don’t want to become infertile.

2 Comments
2024/10/31
17:16 UTC

1

Alopecia for two years

Hi all,

I started having patches of alopecia in my beard. I visited a doctor who gave me steroid injections in my beard. I was really excited hoping it would fix the issue.

Two years later the alopecia is still here and I find that it won’t go away. The hair starts to grow back for like a week or two and then it falls out again. It follows the same cycle. My beard starts to burn thenthere is a spot on the border of the circle patch then the hair around it becomes split and then the hair falls out.

Now what I’ve noticed is the patch circles are exactly where I was injected with the steroid so my theory is the steroid injections ruined my regrowth (I think I was given too much). My hair just won’t grow back and I hate it. It’s knocked my confidence a lot.

I’ve tried using multiple products on my face. I use beard oil for the split ends. I’ve tried gentle shampoos nothing works at all and I’m losing my mind over it.

Any tips?

3 Comments
2024/10/31
14:29 UTC

3

How many times a day are you actually meant to use minoxidil? some say once a day but some say twice.

2 Comments
2024/10/31
14:27 UTC

3

Toddler Hair loss at crown

Hello,

I am wondering what's going on with my 2 year old's hair. This is the second time this has happened, and it grew back. Now it's like this again. I did ask her Dermatologist the first time and he was not concerned at all. He said it would grow back, and he didn't think it was alopecia.

But does this look like alopecia areta?

4 Comments
2024/10/31
13:11 UTC

5

Update: also losing eyebrows, first time Alopecia

I posted yesterday about a spot at the back of my head. Today in shower i was also feeling like i was losing hair on other parts of my head so i'll likely get more patches. Which i guess i already kinda saw coming. However... Also my eyebrows 😭🫣 Its not visible yet but i just wiped like 5-8 hair from both of them. Not pulling just rubbing my face to wash it. I feel like that makes it so much more likely I am royally Fd Am I gonna lose all my hair now? Or how likely will it be? Cause I'm genuinely so sad and stressed about it now. Especially since this has only been happening for a week and it's happening at such a rapid rate.

4 Comments
2024/10/31
10:47 UTC

3

When to stop topical minoxidil?

I was diagnosed with AA two months back and my doctor suggested me to use steroid lotion and minoxidil 2%. After using everyday for two months I have full hai growth in that region. Can I stop now and let it grow on its own and should I keep using it ( till when) because using minoxidil is making my scalp very itchy.

4 Comments
2024/10/31
07:00 UTC

3

Don’t laugh at my technique 😅

There is a very OBVIOUS line of demarcation in my hair growth. I’m doing my best to take a photo in front of a white book to show it, so please don’t judge haha. I’ve been doing trims since my diagnosis and first bald spots, and now it’s literally half of my hair. The top half is back to thick, and the bottom is when I was actively suffering from alopecia.

Some content warning of what possibly led to my alopecia below.

My backstory: witnessed my 21 year old cousin pass January 2023, just two weeks after his older brother slipped on black ice and an x-ray showed a surprise brain tumor. Then in March, my cat was poisoned and couldn’t be saved. In April I moved into a party house with gang activity, obviously I wasn’t aware of when touring the place, where I was assaulted numerous times. It could have been worse, but I also wasn’t in a good situation.

First bald spot I noticed putting my hair back for work April 2023. It was the size of a dime with a pimple like bump in the middle. I assumed a spider or tick got me. It RAPIDLY became the size of my palm by the time I got to a dermatologist. During that time I had multiple spots on the top of my head, near my ears, and in the front.

I was prescribed a steroid cream twice, and the second time prednisone but I never took it, only used the steroid cream.

I have not returned to the dermatologist since July 2023. Lack of funds and insurance is the main reason. My last spot to appear was directly in front. It became the size of a dime, then stalled. It didn’t get worse but it didn’t get better. Within the last two months, it’s starting to grow back in, and grow back in immediately black, not white.

The other white hair that grew in is possibly gone as well. Looking back at photos from that time, my grey hair has drastically reduced? Greys were never a concern for me, but I guess that’s good news.

My hair is still not where it was before all this happened. I’m half Puerto Rican, half Peruvian. We have STRONG hair genetics, some of us sell our hair. I look at old photos and can’t believe my one braid isn’t even half of the size of one, much less two I used to wear.

I cannot wait to be able to trim all of this off and finally have it off of my body forever.

0 Comments
2024/10/31
05:12 UTC

10

How do I just live with it?

I'm 19, from Germany, and I’ve had Alopecia Universalis (AU) since I was two. Over the years, there’s been a bit of hair regrowth here and there, but honestly, nothing worth mentioning. When the new AU medication was finally approved, I felt so hopefu but then I found out it’s not covered by insurance here, and there’s just no way I can afford it on my own.

It’s not like I have a gluten or lactose issue, and it’s not some mystery cause. It’s just alopecia. And I need the meds from Bangladesh or from India? Even that's too expensive atm. Aside from the cost, the possible side effects are also pretty intimidating. I want a family someday, but knowing this med messes with my immune system worries me. To have a family, you also need another thing: a man.

And I’m so sick of hearing, "Everyone’s beautiful in their own way." My family means well, but I keep getting turned down by guys because I don’t have hair. Coming from a more conservative background, where femininity and looks feel extra important, it's just tough.

7 Comments
2024/10/30
22:43 UTC

3

Anyone Use This?

Hiii i’m a 23 year old female currently experiencing Alopecia Areata sadly. I went to the dermatologist in September and she prescribed me this oil as well as Ketoconazole Shampoo 2%. I was wondering if anyone used this and actually saw a difference? I started using it September 24th and my Derm said it takes about 2-3 months to start seeing results but she wants me to keep using it until my next visit which is in March. Thank you!

4 Comments
2024/10/30
22:23 UTC

18

Found solution to my alopecia

I’ve had two reoccurrences of alopecia areata in the past 2 years with regrowth occurring in between and as of right now. I have now realised the reason behind the seemingly spontaneous loss of hair in patches in my case.

It occurred both times when I started gaining a lot of weight or bulking since i’m in the gym. Alopecia Areata is heavily depended on inflammation levels and gaining weight is one of the biggest factors to increasing your body’s inflammation levels.

Regrowth happened as soon as i started losing weight. No more spots appeared and they all slowly grew back. This happened both times, and i’m sure it can’t be a coincidence.

I also improved my diet and have decided to stay at a slim and lean build. I’m probably never gonna bulk up again in fear of it happening again or if i do maybe at a much much slower pace, to reduce the affect it has on my inflammation levels.

Hopefully this helps. I know that we are all different and not everyone has the same case of alopecia areata. However, I had to put this out there in case i’m able to save in a single person too. Goodluck everyone i wish you all the best on your journeys

20 Comments
2024/10/30
04:49 UTC

3

Balding or Alopecia

Hey all. Just trying to figure out what this. I’ve got this spot with less hair on my head. It’s only on the front of my head. Thanks, also in my late 20s

3 Comments
2024/10/30
01:50 UTC

8

Is this signs of regrowth?

This is my 3rd episode of AA. They grew back everytime

6 Comments
2024/10/30
00:00 UTC

4

AA - clobetasol use after a few weeks

I think I already notice some thin hair if you zoom in. My doctor prescribed some clobetasol cream for the spot. It’s still very early though.

2 Comments
2024/10/29
20:36 UTC

1

Zoryve Foam

Wondering if anyone has tried this and seen any improvement? I was recently diagnosed and the derm gave me this before I had my biopsy results. She said it’s supposed to help with inflammation and I have super inflamed/red spots. I’ve been using it for about a week and can’t really tell if it’s helping yet.

FYI it’s technically prescribed for seb derm (which I’m pretty sure I have too).

0 Comments
2024/10/29
17:57 UTC

27

I recovered, Alhamdulillah (thank god)

3 Comments
2024/10/29
06:08 UTC

8

Is this dark spot over my alopecia normal 1 month after steroid injections?

4 Comments
2024/10/29
00:45 UTC

2

Mushroom

Hi, I'm looking for someone who wrote a story about the hidden fungus or dampness in the wall that was causing this alopecia condition and moved to a new city. Can anyone pass me the thread or put me in contact?

0 Comments
2024/10/28
21:40 UTC

1

Spots bald then immediately grow back

Hi, all. Based on my spots looking like everyone else's here I'm waiting on my dermatologist appointment.

I don't know a lot about this disorder. This sub is great compared to Google.

Wondering if it's normal in alopecia for spots to bald then start growing back right away or do they stay bald for a period of time?

6 Comments
2024/10/28
19:18 UTC

2

Wig recommendations

Hi! I'm thinking of getting a wig. I want a good quality one but I also don't want to have to spend an exorbitant amount. Got any recommendations?

2 Comments
2024/10/28
15:55 UTC

3

If it is diffuse alopecia areata, is it normal to see thinner hairs?

If someone has this kind of alopecia, would the follicles stop producing hairs all of a sudden or would it make follicles thinner and thinner with a fast pace?

1 Comment
2024/10/28
13:42 UTC

6

Sex Hormones Study

Hi all,

I recently came across the study below and I’m curious whether anyone on here has any experience on norethindrone (which is also in some birth control pills) and or metformin to treat their AA?

I can’t find any other related studies but it’s definitely an interesting outlook on the disease.

https://www.researchgate.net/profile/Colleen-Reisz-2/publication/262167696_Reinstitution_of_immune_privilege_in_alopecia_areata/links/02e7e536cc06633f58000000/Reinstitution-of-immune-privilege-in-alopecia-areata.pdf

2 Comments
2024/10/27
12:20 UTC

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